Search results
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UK NICE Guidelines to be reviewed
ICYMI The UK NICE guidelines are to be reviewed after months (years!) of campaigning by patients. NICE Guidelines Review CG53 The reason for its importance is that we have a public health service in th UK (NHS) so decisions about recommended treatments are made at a national level. This has...- Seanko
- Thread
- nice
- Replies: 0
- Forum: ME/CFS and FM News
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Lady Gaga Reveals She Has Fibromyalgia
Hopefully Jen Brea's team could maybe get her interested in Unrest.- Seanko
- Post #4
- Forum: ME/CFS and FM News
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Dr Naviaux will be speaking on CDC phone call may 25
Apparently it has been recorded & will be available in a couple of weeks. (According to the OMF)- Seanko
- Post #5
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Struggling Toward Ketosis
Intermittent fasting is maybe an alternative approach. Do a search for Valter Longo at USC. He's looked at the effects of intermittent fasting & auto immune diseases such as MS. Hope this helps.- Seanko
- Post #24
- Forum: Diet and Improving Your Gut
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Struggling Toward Ketosis
When you are making smoothies, you are breaking down plant fibres & releasing sugars quick into the bloodstream. If you were to measure your blood sugar with the sort of meter diabetics you may see a spike in blood glucose. Ketosis will only begin if you use up blood sugar and glycogen stores...- Seanko
- Post #23
- Forum: Diet and Improving Your Gut
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ME Research UK and the UK ME/CFS Research Collaborative
The whole research scene in the UK is a ghastly mess. Controversial paediatrician Esther Crawley tends to dominate things and the charities and patients treated with irritation & contempt.- Seanko
- Post #3
- Forum: General Discussion
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Mady Hornig, M.D. vs Trustees of Columbia University and Walter Ian Lipkin, M.D.
I guess you've seen the New York post coverage which concentrates on the more lurid aspects of the case. http://nypost.com/2017/05/20/professor-sues-after-boss-made-her-inspect-his-butt/- Seanko
- Post #18
- Forum: General Discussion
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Mady Hornig, M.D. vs Trustees of Columbia University and Walter Ian Lipkin, M.D.
For those of us living in Britain, we are dependent on the US & Norway to do the decent research. So when you hear about the fall out at Columbia, we feel the pain too.- Seanko
- Post #17
- Forum: General Discussion
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Dr Naviaux will be speaking on CDC phone call may 25
Looking forward to hearing the details from anybody listening in.- Seanko
- Post #3
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Researchers in Nevada are close to a diagnostic test
@Anomie thanks for posting.- Seanko
- Post #9
- Forum: ME/CFS and FM News
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Article: One of the biggest myths about chronic fatigue syndrome just got destroyed
The paper is here. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5217865/ Impaired calcium mobilization in natural killer cells from chronic fatigue syndrome/myalgic encephalomyelitis patients is associated with transient receptor potential melastatin 3 ion channels T. Nguyen, 1 , 2 S...- Seanko
- Post #2
- Forum: ME/CFS and FM News
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Jen Breas Ted talk is up!
The TED website is back up https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose- Seanko
- Post #5
- Forum: Advocacy, Contests and Events
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Jen Breas Ted talk is up!
@Anomie The link you provided works fine :)- Seanko
- Post #4
- Forum: Advocacy, Contests and Events
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Jen Breas Ted talk is up!
The TED website has crashed!- Seanko
- Post #2
- Forum: Advocacy, Contests and Events
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New Fluge & Mellas new metabolic profiling study
@Cort Reduced levels of BCAAs have been found in the Naviaux and Fluge & Mella studies too. After reading the Naviaux paper, i took a punt on trying BCAAs. Difficult to be objective but I would say in association with Creatine, they have helped.- Seanko
- Post #20
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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'Humoral Immunity Profiling of Subjects with ME Using a Random Peptide Microanarray'
From the discussion "In this report, we present a “proof-of-concept” study where random peptide arrays show utility in delineating ME cases from healthy controls. The ultimate goal of this work is the development of a non-subjective clinical tool for diagnosing patients with ME. To this end...- Seanko
- Post #3
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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'Humoral Immunity Profiling of Subjects with ME Using a Random Peptide Microanarray'
The paper is here. http://link.springer.com/article/10.1007/s12035-016-0334-0 Authors & Institutions Sahajpreet Singh 1 Phillip Stafford 2 Karen A. Schlauch 3 4 Richard R. Tillett4 Martin Gollery 5 Stephen Albert Johnston 2 Svetlana F. Khaiboullina 1 6 Kenny L. De Meirleir 1 Shanti Rawat 1...- Seanko
- Post #2
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Vitamins & energy
Feeling wired...guessing that Provigil (modafinil) conributes to this feeling as would taking other stimulants such Ritalin or Adderall. I don't respond well to stimulants therefore I limit my consumption of tea & avoid coffee to avoid messing up sleep pr that overwired feeling Suspect that... -
Vitamins & energy
Hi @Cilla , I get headaches at particular times especially after waking up from a deep sleep after an afternoon nap. It is accompanied with grogginess. I usually just drink tea (for the caffeine) and take ibuprofen. Both help constrict the blood vessels and reduce the headache feeling. -
New Fluge & Mellas new metabolic profiling study
FLUGE, MELLA, AND ARMSTRONG: MORE SUPPORT FOR DISORDERED METABOLISM IN ME PATIENTS http://www.meaction.net/2016/12/23/fluge-mella-and-armstrong-more-support-for-disordered-metabolism-in-me-patients/ One of the frequent complaints of patients, researchers, and policymakers about ME research is...- Seanko
- Post #13
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Impact of ME/CFS chronic fatigue syndrome on identity among young adults
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