Unraveled #3: Ruhoy and Kaufman on Idiopathic Intracranial Hypertension in ME/CFS and Complex Diseases
This blog follows the discussion between two ME/CFS experts, Dr. Ilene Ruhoy and Dr. David Kaufman, on their March 8th, 2023 edition of their Patreon channel: Unraveled. Two chronic fatigue syndrome (ME/CFS) experts; Dr. Kaufman – an internist - and Dr. Ruhoy – a...
Amantadine – A Fatigue Reducer for Long COVID and ME/CFS?
It seems a bit odd that we haven't heard much about amantadine (Gocovri, Symadine, and Symmetrel) in chronic fatigue syndrome (ME/CFS) or long COVID. They are, after all, the two big fatiguing diseases on the planet, and amantadine is the go-to drug for fatigue in...
Vaccines and Long COVID: Protectors or Exacerbators or Both?
Will we ever get away from the vaccine question? Probably not but at least we're getting studies on their effects not just on COVID-19 but on getting long COVID and even healing from it. While they're not on chronic fatigue syndrome (ME/CFS) they're particularly...
From Skeptic to Advocate: Wes Ely, Long COVID, ME/CFS and his Big Baricitinib Trial
Thanks to everyone who supported Health Rising during its fundraising drive! We will report the results in about a week 🙂 What a heartening story Wes Ely MD, MPH is. He's precisely the kind of researcher we want studying long COVID (and ultimately, ME/CFS. Given how...
Putrino’s Autonomic Rehabilitation Program for Long COVID: Does it Work?
Our last blog covered a study showing that intense exercise messes with the mitochondria, inhibits energy production, and can even produce muscle damage in some people with long COVID. Is all exercise necessarily bad, though? ME/CFS experts, and now David Putrino in...
Exercise Causes Muscle Damage and Energy Depletion in Long COVID
One of the dangers facing the long-COVID research field was an over-emphasis on immune functioning and an under-emphasis on metabolism and energy production. While exercise studies showed up pretty early in chronic fatigue syndrome (ME/CFS), it took the field a while...
To Have a Pet or Not with ME/CFS, Fibromyalgia and/or Long COVID + a Good-Bye to River
It's not all about the research or even finding good treatments. It's also about getting through these diseases in as good shape as possible, and for me - my dogs, River and Skye - have been a big help. After Tug - a Border Collie mix I grew up with - I thought I...
Looking Back at 2023 in ME/CFS, Long COVID and FM- the Most, Best, Cleverest and Strangest
Twenty-twenty-three turned out to be quite a year. No, we didn't solve long COVID or ME/CFS, but good trends emerged for both diseases. A strong focus on new treatments, two post-infectious/neuroimmune centers opening up, a new tool developed specifically for these...
Triple Antiviral Coronavirus/Herpesvirus Approach Scores in Very Early Long COVID Testing
The Inevitable Combination Treatment Approach? Chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), and long COVID are complex diseases that affect many systems and can cause a remarkable number of symptoms. It's certainly possible that someone will get to the core...