Hypothyroidism of the Muscle? A New Thyroid Subset Emerges in ME/CFS
This is the first of two blogs on atypical thyroid issues in diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), and long COVID. If you're taking thyroid and aren't getting the boost you expect, these blogs might be for you. They're also for people...
Voracious Brains, Inflamed Muscles and Immune Invaders? The NIH ME/CFS and Long COVID Conference Pt. II
The second post on the NIH's ME/CFS and long COVID Conference focuses on a timely issue - the brain. The Nath study proposed that ME/CFS was an immune-driven brain disorder. This part of the conference made it clearer than ever that the...
The RECOVER Initiative – Not the Solution for Long COVID (Or Anyone Else)? The Lisa McCorkell Interview
The NIH's RECOVER Initiative is in a strange place. It's gone through most of its $1.15 billion nest egg without producing anything of note and its critics abound. It does have its supporters. Steven Deek at UCSF called RECOVER "a great success“, and other researchers...
Unraveled #4: Drs. Ruhoy and Kaufman on Sleep in ME/CFS, FM, long COVID and Allied Diseases
Sleep Series This is the 2nd in a series of (at least) 4 blogs on sleep. Pt. I - Bronc kicked the series off with an interview of Dr. Bruck - a retired sleep researcher whose son has ME/CFS. Pt. II - is an overview of a fascinating talk by two long-term ME/CFS/FM and...
Bad Motor? Are ME/CFS, Fibromyalgia and Long COVID all Motor Cortex Diseases?
Avindra Nath’s big ME/CFS NIH study recently found increased motor cortex excitability and issues with effort preference and “reward” in ME/CFS. Reward is kind of a weird but important term in neuroscience. The “reward system” is...
The Vampire: Is the Immune System Sucking the Energy Out of People with ME/CFS? – the NIH ME/CFS Conference Pt. I
Joesph Breen from the National Institutes of Allergy and Infectious Diseases (NIAID) - which sponsored the conference - started the if off by referring to the last NIH ME/CFS conference - in 2019 - which was intended to accelerate...
Dan Neuffer on Recovery From ME/CFS and FM Pt. 4: “Stop Trying So Hard to Recover!”
"Stop Trying So Hard to Recover!" Dan Neuffer Dan Neuffer has been investigating ME/CFS and FM recovery stories longer than anyone. In our 3-part series of interviews so far, Dan has said that he's now seen so many recovery stories that he's stopped counting them,...
Roadmaps/Conferences/Advocacy Week/Webinars/Seminars Oh My…
Things are happening...so many things are happening (or have happened). In an effort to keep up with them - and not to miss some very timely events - I'm going to try and pack as many as I can find into one resource blog. Time-Sensitive Events Solve M.E.'s Advocacy...
Sleep Issues in People with ME – A Conversation with Professor Dorothy Bruck
(Thanks to Bronc for another guest post - this time focusing on the unrefreshing sleep that permeates this disease. In it, Bronc talks with a sleep researcher, Dr. Dorothy Bruck, whose son has ME. This is Pt. 1 of a 4-part series on sleep) Just before Xmas 2010, I...