In 2015, Dean Echenberg, MD, PhD, a former public health official and Director of Disease Control in San Francisco at the height of the HIV/AIDS epidemic, had a question. His own course of ME/CFS had been anything but smooth. Echenberg had experienced years of illness...
A Story With Hope “Just over a year ago, I could not leave my house without a wheelchair. I spent most of my day on a couch or a bed, lying or sitting down. I avoided light, sounds, gatherings.” Christine I attended the Accelerating Research on ME/CFS...
Who better to write this piece “This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself” than Ryan Prior – who himself recovered from a debilitating mysterious disease. Doug Lindsay’s story is so powerful...
Talk about survivor’s remorse. To this day, I still can’t come to terms with a world in which Jarret and Dan are cut down in their prime, while I continue on. That will never make sense to me. Not now. Not ever. It’s not worth concealing either. I feel guilt that I’m...
In Part IV of Kyle McNease’s ME/CFS narrative of going from abundant health to being severely ill and then back to relative health, Kyle is rocked both physically and emotionally by an unexpected and tragic loss. Thanks to Ken Anbender, a former ME/CFS patient, for...
In Part III of Kyle McNease’s narrative of going from abundant health to a severe case of ME/CFS, and then back to relative health, a loss hits Kyle hard, he ponders the fact that life didn’t realize he had other plans, and he comes to a surprising realization...
