Frequently Asked Questions
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You can find different protocols in the Resource Manager by clicking on Treatment Protocols in the main Forum menu bar.
All treatment protocols will show up in a thread in the appropriate Forum (i.e. protocols addressing gut problems will create a thread in the gut forum).
Bookmarking allows you to collect posts you may want to refer to again. Simply hover over the bottom of the post and the Bookmark Icon will appear. Click on that add a note to yourself about it if you wish and that post will show up in your Bookmarks section in your profile. (Or you can add a note to self and click on 'QuickLink' for easier access to your bookmarks. You bookmark will then show up if you click on the Bookmark tab on the main Forum menu.
You can 'Watch' the thread (a string of posts) by clicking on "Watch this thread" on the upper right hand side of the first post in a thread.
Depending on which you want you can have a link to the next new post in that thread delivered to the "Watched Thread" section in your profile or sent to your email address.
On the edges the two disorders definitely have differences; the extreme weakness and debility found in really severe ME/CFS patients doesn't show up in FM and the excruciating pain and allodynia in severe FM patients rarely shows up in ME/CFS - but in thelarge middle ground there's a huge overlap in symptoms, research findings and treatments. As researchers uncover more muscular problems in ME/CFS they're uncovering more immune abnormalities in FM; the disorders are moving closer to each - not further apart.
Unfortunately, research for the two has been largely 'siloed' with FM and ME/CFS researchers having little to do with each other. Hopefully that will change. Physicians who treat both tend to see the two disorders occurring on a continuim of pain, fatigue and other symptoms.
The basic rules are to treat people with respect, don't get personal and if you feel like you want to reach into the computer and pull someone's head off - it's probably time to take a break and reflect on the fact that everyone's opinion is valid (even if its wrong, wrong wrong! They think you're wrong, wrong, wrong! as well ). What's not valid is expressing an opinion in a demeaning or overly aggressive way.
Your opinion (probably) won't get you into trouble but the way you deliver it may.
All opinions are valid but if a person is continuously stirring things up and causing a lot grief on the Forums we'll take a look at that.
One ID per person please. Don't slam ME/CFS organizations in your signature. Representatives of companies are welcome if you identify yourself as such. Spammers will be eradicated upon contact.
Only caregivers are allowed in the Caregiver Forum. This is so they have the freedom to express themselve fully with other caregivers. Please respect this.
Once you put your content on Health Rising it's basically ours. You're free to modify it if you wish, but we will not eliminate whole threads and we won't eliminate all your posts. If you made a mistake in your post you can click on the edit button and fix it. We're very conscious of the need to maintain privacy; if something comes up that you feel transgresses the level of privacy you wish to maintain, let us know.
There are two ways to add a resource:
- Click on the Resources tab on the main Forum menu bar at the top of the page, click on the type of resource you want to add and then provide information on that resource, a url, phone number, video - whatever is applicable.
- in the applicable Forum click on the add a Resource tab in the upper right hand section of a thread.
Any resource you add to the Resource Manager automatically shows up in a thread in the applicable Forum. For instance providing a resource for Pain Relief will show up in the Pain Relief Forum (as well as in the Pain Resources section).
*If you manage a resource which has already been listed and would like to modify it -please let us know and we'll make that happen.
- Find the video you want to add. If it's on Youtube click the Share button and then copy the url provided.
- Click on on the Media button on the main Forum menu bar
- Scroll down on the left hand side of the page and click on the major category (Chronic Fatigue Syndrome, Fibromyalgia, Mind/Body Approaches) the video best fits and then pick the subcategory (if there is one).
- Then click on Add Media in the gray menu bar near the top of the page. (It's a little hard to find).
- Then click on Embed Media (the default is Add a Picture), add the URL to the box and click on the plus sign.
- If you want to change the title of the video click on the pencil sign below the picture of the video. (I often remove the You Tube designation)
- Click on Save Media and you're done! Thanks for helping building Health Rising's video library
Examples of Resource Pages include antiviral protocols, how to Combat SIBO, How to do a paleo diet, NIH spending on ME/CFS or FM, what the Canadian Consensus Definition is, how to test for thyroid deficiency, etc. They do not organizations that have physical location - see Reviews (and their mapping feature) for that.
Whether you decide to do a post in the Forums or a Resource both end up as threads in the Forums. One advantage of posting a Resource is that it's held in the Resource Manager which makes it easier to find again.
Why do you use "Chronic Fatigue Syndrome" in the title and in some places in your blogs when better names are available?
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