Merry
Last Activity:
Apr 29, 2017 at 2:28 PM
Joined:
Mar 17, 2015
Messages:
612
Likes Received:
545
Trophy Points:
93

Following 3

Followers 2

Gender:
Female
Birthday:
Dec 3, 1951 (Age: 65)
Location:
north coast, Ohio

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Merry

Well-Known Member, Female, 65, from north coast, Ohio

Goal lately: to get and stay well enough to write a will. Accomplished. Mar 18, 2016

Merry was last seen:
Apr 29, 2017 at 2:28 PM
    1. Merry
      Merry
      Goal lately: to get and stay well enough to write a will. Accomplished.
      1. Seanko likes this.
      2. View previous comments...
      3. Who Me?
        Who Me?
        Smart, I have one too but some people don't understand the difference between a will and an Health power of attorney, advanced directive etc. And there is also a difference between those and a DNR.. Merry, totally get what you mean in your comment to Cort.
        Mar 19, 2016
      4. Merry
        Merry
        Thank you, @Who Me?, for your interest and for your understanding.
        Mar 19, 2016
      5. Who Me?
        Who Me?
        Totally get it.
        Mar 19, 2016
    2. Seanko
      Seanko
      Thanks. If you think of something let me know. Jarred Younger mentioned he will be fundraising to conduct trials on ME/CFS using already available drugs soon.
      1. Merry likes this.
      2. Merry
        Merry
        Yes, if Jarred Younger asks for money for research, he would be a good researcher to give money to. In the past year I've given money to the Open Medicine Institute several times. I think Phase I of the study of the severely ill is now funded. I don't know when they will begin Phase II.
        Mar 18, 2016
      3. Merry
        Merry
        I have also given money to SolveCFS Initiative; I am impressed with the new leadership there. Cort, of course, does good work for the community. So many individuals and organizations are now active and deserving -- so much progress in the last five years!
        Mar 18, 2016
    3. Seanko
      Seanko
      Is there a cause in the ME/CFS charity/non profit in the US you can recommend? I will make a donation :)
      1. Merry likes this.
      2. Merry
        Merry
        Thank you for your generous offer, Sean. But a donation need not go to a charity/non-profit in the US. Good research going on in any country has the potential to help patients world-wide.
        Mar 18, 2016
    4. Seanko
      Seanko
      Thank you very much for sponsoring me on the Walk for ME 2016 :)
      1. Merry likes this.
    5. lizpwc
      lizpwc
      Hi Merry We have to know each other! My name is also Merry, & I have a Dec Birthday also! I've had CFS since around 1987
      1. Merry likes this.
      2. Merry
        Merry
        Hello, Merry! How strange. I feel like I'm talking to myself. Very nice to meet you. Yes, I'd like to get to know you. If you ever have the extra energy, tell me your story in a private message. Happy Birthday! (I haven't checked your profile to see if the exact date is listed). Take care. Merry 2 (or, likely, Merry Sr.)
        Dec 16, 2015
    6. Merry
      Merry
      Moving soon 114 miles north, near Lake Erie.
      1. Cort
        Cort
        Good luck on the move - I hope it's not to taxing! and that you move to a better place...
        Aug 18, 2015
      2. Merry
        Merry
        Thank you, @Cort. I am apprehensive. All too difficult. But the new place is at the edge of the small town where my son works, so I will get to see him more often.
        Aug 18, 2015
    7. Merry
      Merry
      I survived Awareness Day 2015.
      1. sue la-la and Who Me? like this.
      2. Cort
        May 14, 2015
    8. Barbie
      Barbie
      Dear Merry - I'm from Kenton, OH, thus, know Columbus well! How is Columbus?? And how are you??
      1. Merry
        Merry
        Nice to meet you, Barbie. I grew up in Logan County and have been through Kenton many times. Columbus is ok. I have been here for 7 (?) years but anticipate moving in the next few months.
        Mar 29, 2015
      2. Who Me?
        Who Me?
        I'm originally from Cleveland but escaped in 75. I went to OU! Best 4 years ever!
        Mar 29, 2015
    9. GracieJ
      GracieJ
      Kindred spirits... I was born Dec 3, 1961.
      1. Merry likes this.
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  • About

    Gender:
    Female
    Birthday:
    Dec 3, 1951 (Age: 65)
    Location:
    north coast, Ohio
    I am a:
    • patient
    I have been diagnosed with:
    • Chronic Fatigue Syndrome
    • Fibromyalgia
    • Postural Orthostatic Tachycardia Syndrome (POTS)
    • Irritable Bowel Syndrome
    Date of Onset:
    <1970
    Subscribe to the Forum Newsletter:
    yes, I would like to get the once a month Forum newsletter

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    I am carried in my shadow/ like a violin/ in its black case. -- Tomas Tranströmer