ShyestofFlies
Last Activity:
Jun 20, 2017
Joined:
Feb 18, 2016
Messages:
195
Likes Received:
162
Trophy Points:
43
Treatment Resources:
1
Gender:
Female
Birthday:
Dec 2, 1991 (Age: 25)

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ShyestofFlies

Well-Known Member, Female, 25

ShyestofFlies was last seen:
Jun 20, 2017
    1. There are no messages on ShyestofFlies's profile yet.
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  • About

    Gender:
    Female
    Birthday:
    Dec 2, 1991 (Age: 25)
    I am a:
    • patient
    • friend of a person with ME/CFS or FM
    • person
    I have been diagnosed with:
    • Fibromyalgia
    • Irritable Bowel Syndrome
    • Autoimmune disorder
    • Other Type of Chronic Pain
    Date of Onset:
    1995-99
    Functional Level:
    bedbound
    Subscribe to the Forum Newsletter:
    yes, I would like to get the once a month Forum newsletter
    Here's my journey thread for full background.

    The short version:
    Diagnosed with undifferentiated connective tissue disease and fibromyalgia in 2014. I take plaquenil for the uctd arthritis symptoms and wait patiently to see if my bloodwork clarifies of it I have Sjogren's or Lupus or stays "mild" (unable to use my hands at all when unmedicated) with uctd.

    I have tried effexor and cymbalta for the fibromyalgia, but currently receive no treatment for it other than yearly checkups (boo!).

    Since a very bad virus in September 2015 I have been completely debilitated, with only 15% of my healthy energy, unrestorative sleep, new muscle pains, tender lymph nodes, sore throat, reocurring flu like symptoms/malaise, excessive light sensitivity, and extra brain fog.

    My doctors have ruled out b12 vitamin deficiency, discovered and corrected a vitamin D deficiency, ruled out diabetes, hormonal, and thyroid issues.

    I am currently trying to figure out where to go next and what to try as my rheumatologist didn't seem interested in helping me with this new thing. She recomended trying an infectious disease specialist and gave me some samples of nuvigil, so that's where I am right now.

    Signature

    You can call me Shy. :shy:
    Diagnosis: ME/CFS, UCTD/Seronegative Arthyralgia, FM, Reynaud's Syndrome, IBS
    Suspected additional possibilities: Endometriosis, PCOS, dysautonomia
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