Advocacy - ME/CFS

Top Resources

  1. Is It Real
    Help family/friends/doctor understand you are sick & what you are going through - by Sandy Hancock
    Updated: Dec 1, 2015
  2. The Archive For The ME Global Chronicle - http://let-me.be
    We Store IT - by Eddy Keuninckx
    Updated: Dec 26, 2014
  3. "Thirty Years of Disdain: How How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis
    A shorter version of Mary Dimmock's magnum opus - by Cort
    Updated: Jun 20, 2016
  4. Thirty Years of Disdain: How the HHS Buried M.E.
    Comprehensive Study of ME/CFS Definitional Issues, History and Funding Issues - by Cort
    Updated: Jun 20, 2016
  5. [Survey] Before and after onset of me/cfs and fm
    A google socs survey on life style before and after onset of me/cfs or fibro and if recoverd, - by ShyestofFlies
    Updated: Mar 7, 2016
  1. Cort
    0/5, 0 ratings
    Downloads:
    116
    Updated:
    Jun 20, 2016
  2. Cort

    Thirty Years of Disdain: How the HHS Buried M.E. 2016-06-20

    Comprehensive Study of ME/CFS Definitional Issues, History and Funding Issues
    0/5, 0 ratings
    Downloads:
    151
    Updated:
    Jun 20, 2016
  3. ShyestofFlies

    [Survey] Before and after onset of me/cfs and fm

    A google socs survey on life style before and after onset of me/cfs or fibro and if recoverd,
    0/5, 0 ratings
    Updated:
    Mar 7, 2016
  4. Cort
    0/5, 0 ratings
    Updated:
    Feb 11, 2016
  5. Cort

    NIH Bg Grant Package (RFA) Checker For Chronic Fatigue Syndrome

    Who is getting the big grant packages ME/CFS needs - and is not getting?
    0/5, 0 ratings
    Updated:
    Dec 14, 2015
  6. Cort

    Images To Support Awareness in ME/CFS

    Dozens of well-wrought images and info charts to use in helping people better understand ME/CFS
    0/5, 0 ratings
    Updated:
    Dec 9, 2015
  7. Sandy Hancock

    Is It Real

    Help family/friends/doctor understand you are sick & what you are going through
    5/5, 1 rating
    Updated:
    Dec 1, 2015
  8. Cort
    0/5, 0 ratings
    Updated:
    Oct 16, 2015
  9. Cort

    ME/CFS Organizations Demand Congress Restore CDC Funding Program

    Orgs respond to Congress's zeroing out of CDC's CFS programs funds
    0/5, 0 ratings
    Updated:
    Aug 7, 2015
  10. Cort

    Clinicians and Biomedical Experts Request Major Ampligen Review at FDA

    June 2015 request asks for two day meeting to produce conditional approval of Ampligen
    0/5, 0 ratings
    Updated:
    Jul 25, 2015
  11. Cort

    Final AHRQ Report on Treatment and Research Needs for ME/CFS (2015) 2015-06-16

    Prepared for the Pathways to Prevention Report on ME/CFS
    0/5, 0 ratings
    Downloads:
    67
    Updated:
    Jun 16, 2015
  12. Cort

    Final Pathways to Prevention Report on ME/CFS 2015-06-16

    Urgently calls for increased research funding
    0/5, 0 ratings
    Downloads:
    78
    Updated:
    Jun 16, 2015
  13. Cort

    Charts and Graphs For Effective Advocacy

    funding, studies, etc. over time
    0/5, 0 ratings
    Updated:
    Jun 4, 2015
  14. Cort

    Looking for an ME/CFS Champion: Llewellyn King's Letter to Congress

    "A job for a lone Congress member: Speak up for a forgotten disease"
    0/5, 0 ratings
    Updated:
    Jun 3, 2015
  15. Cort

    Nancy Klimas HIV/AIDS - ME/CFS Quote

    Would rather have ME/CFS than HIV/AIDS
    0/5, 0 ratings
    Updated:
    May 11, 2015
  16. Cort

    Pathways to Prevention Draft Report

    Identifying gaps in ME/CFS research with regard to biomarkers and diagnosis
    0/5, 0 ratings
    Updated:
    Feb 23, 2015
  17. Cort

    IOM Reports

    IOM Report on Diagnosing ME/CFS and the Name
    0/5, 0 ratings
    Updated:
    Feb 23, 2015
  18. Eddy Keuninckx
    5/5, 1 rating
    Updated:
    Dec 26, 2014
  19. Cort

    NIH Funding Table

    NIH Funding - Past Five Years
    0/5, 0 ratings
    Updated:
    Jul 21, 2014