- Source of the Story
- My story
- Resource Type
- Patient Story
- Name
- Stoo Brown
- Diagnosis
-
- Chronic Fatigue Syndrome
- Other diagnoses
- Myalgic Encephalomyelitis, ME.
- Diets That Made a Significant Difference
- Gluten Free
- Disease Course Over Time
- Ten year course: first five years mild to moderate, then slowly declining to moderate.
- Type of Onset
- acute-other
- Approximate Date of Illness Began
- 2006-2010
- Duration
- 6-10 years
- Functionality at it's Worst
- Mostly bedbound
- Symptoms
- Severe fatigue, post exertional malaise, cognitive impairment, IBS, sleep disruption
- Positive Test Results
- None
- Treatments That Made A Big Difference
- Faecal Microbiome Transplant (FMT)
- Treatments That Helped
-
Carefully controlled diet: lots of vegetables and fruit; no caffeine, refines sugars, alcohol or gluten
Pacing
- Treatments That Had No Effect
- Vitamin supplements, esp Vitamin D; L-Carnitine
- Present State of Health
-
- Fully recovered - no restrictions at all
- Practitioner Associated With Recovery
- Taymount Clinic, Letchworth, UK.
- Words of Advice
- I believe that FMT is useful for ME and Fibromyalgia but no treatment is going to be 100% effective: results are likely to vary from person-to-person.
- Suggested Resources
-
The Power of Poop website: https://thepowerofpoop.com/
I am a 53 year-old white British male living in Scotland.
I had ME for ten years. Initially it was mild (although severe during relapses) and I was able to do quite a lot - although I had to retire from work. After about five or six years the ME got gradually worse and on average my ME would have been classified as 'moderate' although severe during relapses, which were quite frequent.
I read about Faecal Microbiome Transplant (FMT, poo transplants) including an obscure paper by Professor Borody in which he had great success treating some ME patients. There isn't much other research on the subject so I took a leap of faith and booked a course of treatment at The Taymount Clinic in England.
The course took the form of ten transplants from ten different donors delivered over two weeks. My symptoms started to recede immediately and withing 6-8 weeks I was, and remain, completely symptom-free. I believe I may have suffered some permanent but very mild brain damage from the disease as my memory isn't great but it's not a big problem.
I have uploaded a kind of formal report I wrote about myself to this page and I also have a blog - stoospooblog.wordpress.com - the first page of which lists the resources I looked at.
FMT is painless and has no side effects. The only risk is of infection from the donor poo, which can be circumvented by careful screening.
I understand that FMT is not available in the USA or Canada for ME although you can easily perform the procedure yourself. The biggest problem is getting poo donations screened. Consult "The Power of Poop" website.
I had ME for ten years. Initially it was mild (although severe during relapses) and I was able to do quite a lot - although I had to retire from work. After about five or six years the ME got gradually worse and on average my ME would have been classified as 'moderate' although severe during relapses, which were quite frequent.
I read about Faecal Microbiome Transplant (FMT, poo transplants) including an obscure paper by Professor Borody in which he had great success treating some ME patients. There isn't much other research on the subject so I took a leap of faith and booked a course of treatment at The Taymount Clinic in England.
The course took the form of ten transplants from ten different donors delivered over two weeks. My symptoms started to recede immediately and withing 6-8 weeks I was, and remain, completely symptom-free. I believe I may have suffered some permanent but very mild brain damage from the disease as my memory isn't great but it's not a big problem.
I have uploaded a kind of formal report I wrote about myself to this page and I also have a blog - stoospooblog.wordpress.com - the first page of which lists the resources I looked at.
FMT is painless and has no side effects. The only risk is of infection from the donor poo, which can be circumvented by careful screening.
I understand that FMT is not available in the USA or Canada for ME although you can easily perform the procedure yourself. The biggest problem is getting poo donations screened. Consult "The Power of Poop" website.