Search results
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Jarred Younger's Big Year - ME/CFS and Fibromyalgia Researcher Looks Ahead
I do appreciate what Dr. Jared is doing - confirming inflammation will refute the psychiatric diagnosis more than the other biological markers have. This is the ME definition in the "Dictionary of Biological Psychology": Unfortunately, depression itself may be initiated by brain inflammation...- Katie
- Post #18
- Forum: ME/CFS and FM News
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The Great NIH Exercise Initiative: A Boon for Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia?
Ok WOW. I'll have to read this a couple of times to make sure I have your hypothesis straight. However, when you explained the neuropathy that happens with diabetes, then I got it. Your description of the "hair vessels" is perfect and really makes a whole lot of sense. Sugar and carbs in my diet...- Katie
- Post #30
- Forum: Other Research
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The Great NIH Exercise Initiative: A Boon for Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia?
Yup, I agree, I could be in the first category too as I was a nurse on very busy wards, ran my feet off most shifts, helping almost immobile patients up or move in bed etc. So that plus raising 3 kids on my own that I took camping, skiing etc. and my own stuff: both winter and summer sports plus...- Katie
- Post #28
- Forum: Other Research
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The Great NIH Exercise Initiative: A Boon for Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia?
Like others, I skied, swam, skated, hiked, biked, danced etc etc. I too lost the majority of my friends partly due to natural attrition of just not being involved in sports activities any longer. It hurts, not just physically but emotionally too. This disease can rob everything, everything that...- Katie
- Post #27
- Forum: Other Research
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Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
I haven't tried any vagus stim. machines but I lay on the floor and put my lower legs up on a chair and a small pillow under my butt to raise my hips a bit. This enables the blood to flow back to your head and heart. I rest like that for 15-20 min and feel soooo relaxed with less pain. It's just... -
Vagus Nerve Stimulation in Fibromyalgia and ME/CFS: A Trial of One
Have you tried it and any success? -
Medscape Rocks the IACFS/ME Conference
Yes, and yeah!! Thank goodness for Fluge and Mella. There is hope that this disease will have treatment before I'm long gone!- Katie
- Post #21
- Forum: ME/CFS and FM News
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IACFS/ME Conference Brings the Goods: Last Days for Discounts
Oh, how I wish I could go, but it's a very long way (I live in beautiful British Columbia). When it's on this side of North America, hopefully I could attend then. Can't wait for your reports on the conference-and I'm hoping my ME doctor (Ian Hyams) will be there. I'm eagerly waiting for good...- Katie
- Post #5
- Forum: ME/CFS and FM News
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The Keto Summit: Could You Benefit from a Ketogenic / Paleo Type Diet?
Ok, I'm going to have to do more research on a ketogenic diet. As a former nurse it definitely worries me when somebody is in ketosis-very dangerous as the body becomes more acidic-especially dangerous for a diabetic (diabetic comas are often caused by ketosis) I had a friend years ago who...- Katie
- Post #8
- Forum: Diet and Improving Your Gut
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The Great Chronic Fatigue Syndrome (ME/CFS) Gene Project
I am adopted but my cousin started finding relatives through Ancestry and it turns out my dad descended from a famous Sioux Chief! And they look alike! I was blown away. He never knew, unfortunately he has passed.- Katie
- Post #14
- Forum: ME/CFS and FM News
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The Great Chronic Fatigue Syndrome (ME/CFS) Gene Project
My half sister and I met just a couple years ago. We are 8 years apart, born in different provinces (BC and Manitoba, I was adopted)) yet lived half an hour from each other, unbeknownst to any of us for several years! Our mother died from cancer (where it started is unknown) and I'm very curious...- Katie
- Post #13
- Forum: ME/CFS and FM News
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The Great Chronic Fatigue Syndrome (ME/CFS) Gene Project
As a matter of fact I just ordered 23and Me this morning. A warning: I wasted my money on AncestryDNA-Canada site. They only give heritage information and not medical-I have no idea why, heard different reasons, so I'm re-doing the process with 23and Me. I'm actually both nervous and excited...- Katie
- Post #11
- Forum: ME/CFS and FM News
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Gulf War Illness Vagus Nerve Trial Could Pave Way for Fibromyalgia
I just signed up for their newsletter. I'd love to try it out. The cheaper kind that is. I have to get back to my own style of vagal stimulation: laying on a rug with lower legs on a chair. I've gotten out of the habit of doing this everyday and I'm not feeling well at all. It's so easy to fall...- Katie
- Post #15
- Forum: Relieving Pain
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Hanson's Metabolomics ME/CFS Study Validates Naviaux's Core Finding
Well, this is exciting news whether or not the 2 studies differ in results. The bottom line is they are discovering, and pretty rapidly, the many differences we've acquired through genetics, environment ( acquired viruses, bacterium etc.) that affect each one of us. Finding studies that match...- Katie
- Post #29
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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The Dark North: Canada Denies ME/CFS Grant Because Disease is Not Real
Thanks for adding this to the post. Having known nothing about grant applications, you have explained it quite clearly what can go wrong and that grant committees are from all over the world. When the context or background is missing it's easy to make assumptions especially negative ones. I've...- Katie
- Post #23
- Forum: ME/CFS and FM News
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The Dark North: Canada Denies ME/CFS Grant Because Disease is Not Real
We must (again) turn to other countries for leadership in ME/CFS research. I will however, be consoled by the recent news of the discovery of abnormalities in the metabolic pathways that will lead to concrete diagnosis and hopefully treatment This was my response to the post on facebook from...- Katie
- Post #15
- Forum: ME/CFS and FM News
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The Fibromyalgia and ME/CFS Low Blood Sugar and Diet Poll
I like sweets but they don't like me! I over-did everything last week while on holiday with kids and grandkids. Too many sugar treats, too many sweet drinks like lemonade which I love and French toast one morning-loved it but man am I paying for it now. Increased pain, terrible exhaustion and... -
Is Alzheimer's Disease Caused by Infection? (And Why It Could Matter for ME/CFS and FM)
Yes, pretty scary, the over-lap makes sense, same with some other diseases. Viruses and bacterium, of any sort may affect some people forever, even after treatment. As a nurse I've seen too many patients destroyed by resistant viral and bacterial infections. A co-worker, a young woman with two...- Katie
- Post #7
- Forum: Other Research
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Is Alzheimer's Disease Caused by Infection? (And Why It Could Matter for ME/CFS and FM)
Interesting theory. My dear old Dad, now passed, suffered from AD the last 3 years of his life. He had been on antibiotics several times due to contracting pneumonia x 4. But never on anti-virals. Most elderly people have small plaques on their brain tissue with neurofibrillary tangles that...- Katie
- Post #5
- Forum: Other Research
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Have Doctors Gone Too Far on Exercise For Fibromyalgia?
Has anyone heard of Feldenkreis therapy? I had the most excellent therapist for a few years then we moved too far. The therapist where I now live doesn't have a great rep unfortunately. She also gave me a list of gentle exercises for the pool. We termed it "movement therapy" and that's what it...- Katie
- Post #30
- Forum: FIbromyalgia and Pain Research
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