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  1. JennyJenny

    Local Doctor Gives Hope To Fibromyalgia Sufferers

    "An Evansville physician is going to the American Academy of Pain Management conference in San Antonio Wednesday, to present what could be a breakthrough finding. He suspects the chronic pain of diseases like fibromyalgia could be caused by a series of viruses." Local Doctor Gives Hope To...
  2. JennyJenny

    ME Research UK and the UK ME/CFS Research Collaborative

    ME Research UK has taken the decision to withdraw its membership from the UK CFS/ME Research Collaborative with immediate effect. http://www.meresearch.org.uk/news/me-research-uk-and-the-uk-mecfs-research-collaborative/
  3. JennyJenny

    Mady Hornig, M.D. vs Trustees of Columbia University and Walter Ian Lipkin, M.D.

    Lawsuit: Hornig vs Columbia U and Lipkin https://drive.google.com/drive/folders/0Bzfy9HH9xdjDVVNoWEFxdHNVLUE
  4. JennyJenny

    Health Matters: Chronic Fatigue Syndrome - Radio Broadcast THUR, March 30th, 6PM CNT USA

    Questions will be taken during the show at 1-800-552-8502 or via Twitter @rrrpublicradio. LIVE STREAM at TOP of Page The daily schedule. (Looks like it will be an All Things Considered piece.)
  5. JennyJenny

    Telling the Story of a Forgotten Plague: Chronic Fatigue Syndrome - By: Ryan Prior

    Telling the Story of a Forgotten Plague: Chronic Fatigue Syndrome - By: Ryan Prior
  6. JennyJenny

    Cytokine

    I can't really pull together the information I have read over the years but... Somehow I remember that Cytokines in Fibromyalgia are depleted in number or perhaps their "strength" while in ME/CFS (Lipkin and Hornig studies) they are in two stages, either raging or damaged (the 3 year raging and...
  7. JennyJenny

    MEpedia Has A "Fibromyalgia" Page-UK, Canada, Australia, Europe Edits Needed

    As of now the MEpedia "Fibromyalgia" page is US oriented and the input from the UK, Canada, Australia and Europe is needed especially for Drugs and Research. Diagnostic criteria and types of doctors that treat may also need your input. This will make it an international resource that patients...
  8. JennyJenny

    New Fibromyalgia Blood Test is 99% Accurate

    I don't remember seeing this "definitive" article although knew of his blood test and tried to get my insurance company to pay for it. Sorry if information like this already posted and although I think I saw information on the blood test posted here just cannot remember if it was from this time...
  9. JennyJenny

    Forgotten Plague ME/CFS Documentary DVD PRESALE Is ON!

    DVD PRESALE SITE Forgotten Plague FB Site w/ DVD Q&A
  10. JennyJenny

    Q About Seroquel and Lyrica

    My doctor is trying to treat my Fibro pain, sleep issues and fatigue. I think many doctors try to treat Fibro but don't understand that a patient with both does not do well with usual Fibro patients; we just are not PURE Fibro patients. At any rate, he wants me on a low dose of Seroquel and...
  11. JennyJenny

    'No one chooses to have ME - everything changed when I became ill' - By: Tom Kindlon, UK ME Patient

    As a new study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it's not that simple Tom Kindlon is an ME UK/Ireland Patient Advocate who is very active on Twitter 'No one chooses to have ME - everything changed when I became ill'
  12. JennyJenny

    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study

    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study By David Tuller, DrPH David Tuller is academic coordinator of the concurrent masters degree program in public health and journalism at the University of California, Berkeley. Part 2 coming out tomorrow. By...
  13. JennyJenny

    ME/CFS and H1N1

    Did we see this one? Hornig and Lipkin are involved. Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is associated with pandemic influenza infection, but not with an adjuvanted pandemic influenza vaccine. I don't think they are saying it is exclusive to H1N1, only that the virus...
  14. JennyJenny

    #MEsplaining

    #MEsplaining https://twitter.com/search?src=typd&q=%23MEsplaining
  15. JennyJenny

    I Am The Woman: One Woman's Struggle With Fibromyalgia

    I Am The Woman: One Woman's Struggle With Fibromyalgia
  16. JennyJenny

    Lisa Ling - This is Life - CNN Show

    Lisa Ling does an excellent job on her This is Life CNN Show and I tweeted her a LOT of information on research, researchers, patient suicides and psychiatric wards. This form will also go to the TV Show as long as in the box "Initial Thoughts" you put: IDEA FOR: THIS IS LIFE - LISA LING -...
  17. JennyJenny

    NPR and CDC are suppose to do CFS Programs

    I sent this E-mail to NPR as their show "Morning Edition" is suppose to be working with the CDC on 4-6 shows a year for the next 3 years. I want them to get it right. If you want to write to them I think it would be a good idea. Send them information on whatever research or researchers you...
  18. JennyJenny

    Data-driven approach could help improve allocation of biomedical research resources

    Data-driven approach could help improve allocation of biomedical research resources New method measures disparities between research resources and disease burden, identifies opportunities for future investment Data-driven approach could help improve allocation of biomedical research resources...
  19. JennyJenny

    For veterans with Gulf War Illness, an explanation for the unexplainable symptoms

    And as we know, ME/CFS patients were hit with a viral, chemical, toxic mold or bacterial infection and we share the unexplained PEM symptom. Dr. Klimas is studying GWI patients along with CFS patients. For veterans with Gulf War Illness, an explanation for the unexplainable symptoms
  20. JennyJenny

    Host gene expression during post-exertional symptom flare in ME/CFS: a hypothesis generating study

    Host gene expression during post-exertional symptom flare in ME/CFS: a hypothesis generating study Principal Investigators Dr David Patrick and colleagues Institution School of Population and Public Health, University of British Columbia, British Columbia, Canada Funding National Institutes of...

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