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    Open Medicine Foundation Receives Monster Donation For ME/CFS

    Fantastic news, maybe I am biased, if verbatim Pine sounds female! Thank you, thank you. Re the Weird Blood, in the late 1980's an Adelaide, Australian researcher, Dr Muckajee, ? spelling, found that during a reaction (crash) the RBCs became mis-shapen, swollen, inelastic and unable to travel...
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    Vit B-3 (Niacin): Calming Agent and Chemical Sensitivity Buster?

    I started taking Niacin in the 1970s to assist with Raynauds poor circulation, yes, big flush, face & forearms. On coming to Austrralia obtained a slow release Niacin which was much better. Niacin became unavailable so switched to Niacinamide - no flushing, I still take 500mg daily. Had severe...
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    Could Donald Trump Be Good For Chronic Fatigue Syndrome and Fibromyalgia?

    I agree with Diane, I react to so many of the drugs that have been passed, I would like to see accurate reporting of adverse reactions that are already occuring. So much is ignored or under-reported. It is rather like a lucky dip, you are lucky if there are no adverse reactions. Dropping stage 3...
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    Ron Davis Calls for NIH To Take New Approach To Disease with Chronic Fatigue Syndrome (ME/CFS)

    This is my favourite Paragraph ...This shift in thinking opens up the possibility that ME/CFS has strong genetic and environmental associations, which may also explain the extensive heterogeneity in its presentation, progression, and recovery across patients. The search for novel infectious...
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    Triggering ME/CFS / Fibromyalgia - What Triggers Relapses In You?

    I agree, only 5? also I suspect the triggers would be different for ME or FM, how about one to define
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    Another Psychological Disease Bites the Dust: PTSD Now Believed to Be Physical

    Issie, thank you. First I thought what is MCAS? Wikipedia, oh it is Mast cell activation - right - Histamine/Mast cells an old friend with a new name. 30 years sporadic anti-histamines, steroids, Beta blockers; yes, still shaking, still too often on red alert, but panic label is pinned on...
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    Another Psychological Disease Bites the Dust: PTSD Now Believed to Be Physical

    During the worst few years going up a third step was impossible, even on the level it felt as if I was wearing deep sea divers boots, still have a problem walking more than 50ms, swimming is better than walking - no gravity, but the chlorine pools rule that out. Finding and avoiding all food &...
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    Another Psychological Disease Bites the Dust: PTSD Now Believed to Be Physical

    I can relate to that, I had to go and stay with my daughter when our house interior walls were repainted. Do you consider that MCS Multiple Chemical Sensitivity plus Food Sensitivity are a part of or the same as ME? I have thought they are essentially the same for the last 30 years. Airborne...
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    Is Fibromyalgia A Danger to Chronic Fatigue Syndrome (ME/CFS)?

    The only criteria that I can relate to is in the "M E International Consensus Primer -2012-11-26". I have never been diagnosed with FM, do not have constant muscle pain but only during and after exercise. After listening to people who have been diagnosed with FM, I agree that the two are very...

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