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WARNING TO HEALTHRISING MEMBERS
It has come to my attention that the website has been compromised and that my post on both the Forum and Blog site, what I have said and talked about and even my writing style has been changed. As of today July 18, 2021.....I will no longer participate in the forum or the blogs. A good bit of...- Issie
- Thread
- Replies: 7
- Forum: General Discussion
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MD Proposes Covid and Covid Vaccines are Actually Deadly Prion Bioweapons
Just following. I looked into prion disease a few years ago and found those theories interesting in regard to other illnesses that seem to lay dormant and then reactivate. Likely they would be more like Retrovirus. But its an interesting hypothesis. I think, with time, much will come more...- Issie
- Post #5
- Forum: General Discussion
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Eye/Brain severe fatigue and pain.
I try to use herbals mostly. And make sure I support myself well with pillows and making sure I keep my posture good. Try to hold your phone up more and don't look down too much with neck bent. Look down with your eyes.- Issie
- Post #10
- Forum: General Discussion
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Eye/Brain severe fatigue and pain.
It really sounds a lot like Ehlers Danlos. We have all sorts of issues with our necks and spines and nerves getting pressed on. With lax muscles and connective tissue, we tense up to hold ourselves together and upright. You find us propped up with pillows or using our arms to prop up. It...- Issie
- Post #8
- Forum: General Discussion
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my experience with the valtrex and meloxicam combo
As far as I know, Tagament is the only H2 moderator that won't completely block H2 receptors. We don't want to block them as that is what moderates the histamine release/response from the H1 receptors. Pepcid does block that response. We want to get the H2 receptors to working, not block...- Issie
- Post #18
- Forum: Antivirals and Immune Health
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Problems standing
With POTS, some of us have HRV that allow very little movement if we want to stay in our safe zones. I've been tracking mine lately and even with just preparing food, that can over tax my levels. So when there is also Mitrochondria issues.....less energy there to start with, even some simple...- Issie
- Post #9
- Forum: Dysautonomia - Problems Standing, POTS, NMH, etc
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Problems standing
@cujet, have you been checked for POTS? I have the same issues as you with weakness in my legs and it has gotten worse as the years pass. There are some genetic issues that could be a partial cause for me and can cause ataxia. Both my dad and his dad had this sort of weakness in their legs...- Issie
- Post #5
- Forum: Dysautonomia - Problems Standing, POTS, NMH, etc
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Extreme 'adrenaline seizures'
I hope not either. But I remember her not knowing what was wrong and it took her awhile to find out. She thought it was a really severe form of POTS. With POTS there can also be shaking and tremors and that too can cause anxiety feelings. It also can trigger MCAS and that too can cause... -
Extreme 'adrenaline seizures'
What Dejurgen wrote about electrolytes could be a possibility and worth looking into. A doctor told us to sip the mixture, not to guzzle it, and have water in between. The cells can only uptake so much at one time and drinking a lot at once isn't the best way to get it into the cells and... -
Extreme 'adrenaline seizures'
I remember a person on the POTS forum who described something similar. She did have POTS, but she had more. In the end her DX was Stiffman Syndrome and POTS was secondary. I don't know if this describes what you feel or not. But was the first thing that came to mind for me. I found some of... -
Is it just...over-breathing?
The tape has helped me too. I had severe apena and no longer use my CPAP. Never could adjust to it. Some people will use the tape during the day to train themselves to not breath through their mouth and that improves the oxygen too in the body. Being a mouth breather does all sorts of bad... -
Is it just...over-breathing?
I have the book too, about half way through it. I also got the one from Patrick Keown, "Oxygen Advantage". But he has a newer one out that may have more info in it. Haven't seen it yet. He helps you understand why to not be a mouth breather and what to do to retrain yourself. -
Is it just...over-breathing?
It took me a little while to get adjusted to not being a mouth breather. Your body has to adjust to more CO2 and that actually helps to carry oxygen better. You can practice with the mouth tape while awake and retrain yourself to be a nose breather. Make sure your tongue is at roof of... -
Potential linking FM, mast cells, sleep deprivation, food intolerance, exercise intolerance and ME?
"2. And do you think it's possible that ME/CFS/Fibro is simply autoimmune reaction to something like GAD? But i also heard stories that people cured CFS-like illness after treating ear infection, and probably because immune system calmed down after that." I had my GAD antibodies checked. (I was...- Issie
- Post #49
- Forum: General Discussion
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Potential linking FM, mast cells, sleep deprivation, food intolerance, exercise intolerance and ME?
I did do this back in my earlier days. We used a homeopathic one, as my insurance wouldn't approve injections. And the risk is high for diabetes with HGH. even homeopathic formulations warn if there is insulin resistance or having high blood sugar, you have to keep a watch on it, even with...- Issie
- Post #41
- Forum: General Discussion
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Cured of PEM
Did you mean IGG food sensitivities? When you speak of T cells involvement, that could indicate issues with mast cells as histamine will trigger suppressor T cells to activate and helps to slow down responses to histamine. And histamine can be triggered by foods. Also cumin being known to...- Issie
- Post #29
- Forum: Alternative Health
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Advocacy Effort I Went Public About ME/CFS To Raise Awareness + Research Funding- Here's What Happened
I just read and watched your videos. I did especially like the last personal video. Your sincerity and beliefs in what you were trying to do and convey came through. It is unnerving to share that one has a chronic illness. But it is also a bit liberating. We all deal with things in our own...- Issie
- Post #2
- Forum: Advocacy, Contests and Events
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Cured of PEM
Black cumin seed, both oil and the seed itself, has been talked about in both the Lyme community and also MCAS community. It has been found to be beneficial for both. That having been said, it was not a good fit for me. Whether or not it was causing a herx due to the either Lyme or the...- Issie
- Post #26
- Forum: Alternative Health
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low carb and MCAS
Good site. I agree with her wholeheartedly on there being issues with Glutamate. If you do a search on this forum and the blog site of Healthrising, you will find a lot of research that both Dejurgen and I have done in regard to glutamate and how that plays into our illnesses.- Issie
- Post #11
- Forum: Mast Cell and Histamine
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low carb and MCAS
I have both POTS and MCAS. There are some good threads on this forum in regard to MCAS and a new approach that sounds VERY contrary to what would seem logical. But once you understand how histamine receptors work and what they do and that it takes histamine to help turn certain receptors on...- Issie
- Post #10
- Forum: Mast Cell and Histamine
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Impact of ME/CFS chronic fatigue syndrome on identity among young adults
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TW: Please urgently sign petition to help a fellow ME sufferer
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