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Recommendation: Researcher Dr. Amy Proal's Solve ME/CFS Initiative's sponsored talk 11/14/2019
Today I happened upon this talk, ""ME/CFS in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms by Interfering with Host Metabolism, Gene Expression, and Immunity", by Dr. Amy Proal, a member of a team that won a Ramsay Grant. It was live on Facebook. The talk was...- Merry
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- Replies: 0
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Mast cells, neuroinflammation, and pain in FM
This is a new research paper fromTheoharis C. Theoharides, Irene Tsilioni, and Mona Bawazeer published 2 August 2019 in Frontiers in Cellular Neuroscience.- Merry
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- Replies: 1
- Forum: FIbromyalgia and Pain Research
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IgG neutralizes adverse effects of GWI serum on neural culture
Tsilibary, Souto, James, Engdahl, Georgopoulos (2018) Human Immunoglobulin G (IgG) Neutralizes Adverse Effects of Gulf War Illness (GWI) Serum in Neural Cultures: Paving the Way to Immunotherapy for GWI. Journal of neurology & neuromedicine 3(5) 23-28 Abstract Gulf War Illness (GWI) is a...- Merry
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- Replies: 0
- Forum: Other Research
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Adverse effects of GWI serum on neural culture
Georgopoulos, Tsilibary, Souto, James, Engdahl, Georgopoulos (2018) Adverse effects of Gulf War Illness (GWI) serum on neural cultures and their prevention by healthy serum. Journal of neurology & neuromedicine 3(2) 19-27 Abstract Gulf War Illness (GWI) is a chronic debilitating disease of...- Merry
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- Replies: 0
- Forum: Other Research
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Donate to Buy Fabric for PandoraOrg Covered in Love Quilts
Donna Nowak Roblillard, who, along with other volunteers, makes quilts for PandoraOrg's "Covered in Love Quilts" project, is trying to raise $270 for backing fabric for nine quilts. PandoraOrg gives quilts to ME/CFS patients. You can donate at Donna's Facebook page. See her post today...- Merry
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- Replies: 0
- Forum: Advocacy, Contests and Events
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Dear Abby says, May be time to leave ill partner
Today in her column Dear Abby advises a healthy partner that ending the relationship with a boyfriend who has fibromyalgia and rheumatoid arthritis may be for the best.- Merry
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- Replies: 0
- Forum: General Discussion
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"Thoughts on Reaching 40" by Naomi Whittingham
Naomi Whittingham reflects on a life with severe ME since age 12 in her guest post at the blog of Anil van der Zee.- Merry
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- Replies: 0
- Forum: General Discussion
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Why males get MS less often than females
An article published in Neuroscience News two days ago describes a discovery by scientists at Northwestern University that explains the mechanism that protects male mice from developing the lab mouse version of multiple sclerosis. I liked this little detail about how a mistake led to...- Merry
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- Replies: 8
- Forum: Other Research
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One Time Vote in Rare Artist Competition
Helen, an administrator of the Facebook ME (ME/CFS) Fundraising Group, has posted that a young artist with ME, Andre Montanez, is competing in the Rare Artist Contest. Please vote for Andre's work. Andre is presently in sixth place in her age group.- Merry
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- Replies: 2
- Forum: Advocacy, Contests and Events
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90-year-old talks about 40 plus years with ME/CFS
Conella B.'s story is featured today in Solve ME/CFS Initiative's "Humans of ME/CFS." Her story caught my attention because the last few years I've been thinking more and more about the plight of elderly ME/CFS patients. I am old myself, and I have a close ME/CFS friend in her seventies, and...- Merry
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- Replies: 7
- Forum: General Discussion
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Is MS a Single Disease?
Because the symptoms and disease progression vary so much in MS, researchers have wondered if it is a single disease or multiple diseases. Researchers in Barcelona, Spain, created mathematical models of disease processes using data that had been collected on 66 patients over the course of 20...- Merry
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- Replies: 11
- Forum: Other Research
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Triple Your OMF Donation Through November 28th
During this year's Tuesday Giving campaign, your donation to the Open Medicine Foundation will be tripled thanks to grants from Chris Quinn and Jack and Dilla Cosgrove and family. The initial goal was to raise $150,000, but in this first week, over $130,00 has come in. How much can we raise...- Merry
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- Replies: 33
- Forum: Advocacy, Contests and Events
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Map of Nitrate and TTHM Pollution in Rural US
The Environmental Working Group has produced a map called "Drinking Water in Rural Communities Is Threatened by Farm Pollution." At the top of the map, click on "Map Info" and "Legend" for information on what the map represents. For details on nitrate and TTHM contamination and what can be...- Merry
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- Replies: 4
- Forum: General Discussion
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Cell Danger Response, Autism, CFS and "Her Name Is Sabine"
When I read that Robert Naviaux believes that ME/CFS, along with Gulf War Illness and autism (and a few other illnesses that I can't now recall), are cell danger response disorders, one question that came to mind was whether people with autism suffer from fatigue. I'd never heard the issue...- Merry
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- Replies: 4
- Forum: General Discussion
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Gap between how patients and doctors see patient-doctor relationship
In a blog post titled "The Decline and Fall of the Doctor-Patient Relationship,"Paul Keckley discusses the expectations and needs of both parties in the US medical system. The article doesn't address the relationship between doctors and patients suffering from chronic illnesses, particularly...- Merry
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- Replies: 1
- Forum: General Discussion
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EWG releases new database of pollutants in US municipal water systems
The Environmental Working Group has just published its new database on pollutants in US municipal water systems. EWG's press team discusses the database in a news report at the organization's website.- Merry
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- Replies: 0
- Forum: Health News
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Some Chemicals May Alter Gene Function for Several Generations
The Environmental Working Group recently reported on research on transgenerational chemical damage. I haven't read the research by Mohan Manikkam and Michael Skinner and am not qualified to assess it. EWG's news report links to another short report on the same subject that talks about...- Merry
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- Replies: 2
- Forum: Health News
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Tom Kindlon nominates Cort Johnson for 2016 ME Awards
Tom Kindlon on Twitter and Phoenix Rising has recognized Cort Johnson "for all the hard work he puts into reporting." Congratulations, @Cort. Thank you, Cort.- Merry
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- Replies: 4
- Forum: Advocacy, Contests and Events
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James Coyne reveals Simon Wessley's behind-the-scenes efforts to protect PACE PIs
In a post published today in his blog Quick Thoughts, James Coyne pulls back the curtain on Simon Wessley's backstage machinations to protect the PACE researchers. In the post James Coyne publishes an email Simon Wessley wrote to a patient who had tweeted about PACE. In the email Simon...- Merry
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- Replies: 1
- Forum: ME/CFS and FM News
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Change in heart rate on standing up may predict risk in older adults
The study was on older adults in general, not those with a POTS diagnosis, but after reading about this research, I'm wondering if older POTS patients are at risk of earlier death than the general population...- Merry
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- Replies: 1
- Forum: Other Research
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