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  1. ShyestofFlies

    Poll Do you want to get better? The question unbelievers never seem to ask people with ME/CFS.

    After yet another accusatory paper or article sometimes I wonder about this question. I know what our answer will be as a whole community, but I'd like to see it put to a vote. It is much easier to accuse a group of people with an illness of not wanting to get better if you never ask them and...
  2. ShyestofFlies

    Walitt + Wolfe: fibromyalgia is overdiagnosed, psychosocial, pharmaceutical scam & quote Shorter

    Note: I copied this from C-C's list. The title is not a quote, but a summary of what I take away from the paper (bolding mine) --- http://headache.imedpub.com/fibromyalgia-a-short-commentary.pdf Journal of Headache & Pain Management Fibromyalgia: A Short Commentary Frederick Wolfe and...
  3. ShyestofFlies

    Need help: Finding a HR monitor

    What features did you look for in yours? What should one expect to pay Or what did you pay? What accessories do I need? Chest strap? Best place to buy? Health sites? Amazon? In person store? Any resources which cover this? I've looked and I'm mostly finding stuff for runners and...
  4. ShyestofFlies

    Urinary symptoms, anyone? [ME/CFS]

    From your kidneys, ureters, bladder, and beyond- What's ME/CFS doing to your ability to pee? If you're having urinary symptoms, feel free to answer what you're comfortable with: * New with or after ME/CFS onset? * How troublesome or severe? * How often? * Seeking treatment? Who- PCP/GP...
    • ShyestofFlies
    • Thread
    • bladder problems me/cfs pee poll symptom poll urinary issues urine
    • Replies: 13
    • Forum: Symptoms
  5. ShyestofFlies

    US general election absentee ballot voting

    Hey all, (not sure if this is the right sub-forum?) I've been thinking today that I can't imagine if I have a regular/leaning-bad or bad day that I will be able to vote in person. If you are lucky enough to live in a state that allows absentee/mail in/early voting for the general election...
  6. ShyestofFlies

    Air hunger / mild breathing issues

    For a while I have noticed non emergency issues with my breathing- holding my breath unconsciously, usually from pain or stress- won't breath unless I make myself manually, takes a long time to go away I breathe slower and deeper when I breathe manually, I take less breaths per minute than I...
  7. ShyestofFlies

    Bioidentical hormone replacement therapy the go to in Pennsylvania CAM

    Have you tried BHRT? Any positive results? Any negatives? After doing some reading I can say I'm pretty skeptical, still. My doctor selection in PA is slim when it comes to complementary and alternative medicine friendly doctors. Of 3 options I have- one local, one fairly doable, and one on...
  8. ShyestofFlies

    Getting on the waitlist for a cfs specialist

    So I called one office the other day and their prerecorded message mentioned needing a refering doctor as well as contact information for myself. I might be able to get a referal after my sleep study, but I was hoping to get on the waitlist as soon as possible. I don't think my pcp would like...
  9. ShyestofFlies

    Pillow recomendations?

    My dog had a little unfortunate accident on my favorite pillow this week. Didn't have any tags, so I'm not sure what it was. Some kind of somewhat firm memory foam knock off. Anyway I'm looking for some replacement options. I know we're all different in our sleep prefs to some degree, but...
  10. ShyestofFlies

    Service Dogs?

    I'm curious of anyone has one or is considering getting one. What ways could having a service dog help you? Do the benefits outweigh the energy cost needed to get or train one yourself? For those interested in reseaching more, I will link to some stuff about fm/cfs service dogs...
  11. ShyestofFlies

    Poll Having you ever been accused of "faking it"

    Family members, doctors, co-workers, friends, strangers on the internet. I know me/cfsers and fmers get accusd as a whole of faking it all the time, but... Have you ever personally been accused of faking it?
  12. ShyestofFlies

    Resource [Survey] Before and after onset of me/cfs and fm [Deleted]

    ShyestofFlies submitted a new resource: [Survey] Before and after onset of me/cfs and fm - A google socs survey on life style before and after onset of me/cfs or fibro and if recoverd, Read more about this resource...
  13. ShyestofFlies

    Common Abbreviations 1.0

    ShyestofFlies submitted a new resource: Common Abbreviations 1.0 - Abbreviations you will commonly see used on the forums and on other chronic Illness sites. Read more about this resource...
  14. ShyestofFlies

    Poll How long did it take you to get a diagnosis?

    If you have both fm and me/cfs please post specifics. Please consider the start of seeking a diagnosis as the first time you saw a doctor for your symptoms, not just the onset of the symptoms.
  15. ShyestofFlies

    Poll Thinking of starting a series of small surveys...

    Would anyone be interested in participating in a series of small (maybe 10 multiple choice) surveys about your experiences with cfs/me and fibro? Is it easier to answer questions one poll at a time and elaborate in the thread, or would you find it easier to answ a set of related questions in...
  16. ShyestofFlies

    Poll What type(s) of doctor gave you your diagnoses for Fibromyalgia?

    Fibromyalgia (fm) On your path to an official diagnosis with a shiny number code and everything? Curious who to head to next? I started this poll to see what type of doctor usually treats fm and to help you decide if you need a referal to a specialist. This is the sibling poll to the cfs/me...
  17. ShyestofFlies

    Poll What type(s) of doctor gave you your diagnosis for ME/CFS?

    ME/Chronic Fatigue Syndrome On your path to an official diagnosis? I started this poll to get an idea of where to head next in my journey to getting treatment and pursuing disability. Here is the sibling poll for fibromyalgia: here's the link to that one If you take the poll, then consider...
  18. ShyestofFlies

    Hyperalgesia and needle-phobia as a symptom

    Here's an excellent resource on needlephobia and what solutions are availible for treatment/management: http://www.needlephobia.com Adverse reactions to routine needle sticks that are called needlephobia (you don't need an active fear of needles just a reaction physically to have needlephobia)...

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