This is Dr Olli Polos theory as to the cause of me/cfs. I can't translate it on my iPad. Ty!
http://www.hs.fi/hyvinvointi/art-2000005286419.html
I think that it has to do with Ehlers danlos syndrome or a similar collagen disorder.
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May 25, 2017
3:00 pm - 4:00 pm EDT
NEW CALL NAME
The CDC CFS Patient-centered outreach and communication activity (PCOCA) has been changed to
CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC)
Call number: 1-800-988-9482...
https://meaustralia.net/2017/03/23/biomarker-found-by-melbourne-scientists-mecfs-canadian-consensus-criteria/
I woke up this morning to find yet another possible biomarker found. This one involves activin b?
It's about 16 min long and well worth the watch. He mentions that long term patients may still be fully curable and he also talks about the mTOR pathway along with other interesting developments.
http://nvcbr.org/2017/02/28/nvcbr-researchers-close-in-on-a-diagnostic-test-for-mecfs-patients/
Lots of exciting research going on these days. I wonder how this compares to what the Australians are doing.
https://www.scientificamerican.com/podcast/episode/nih-director-looks-at-presidential-transition/?utm_content=buffer61fec&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
I wonder what this will mean for us?
Update: ok I may have posted too quickly I guess it's protocol so I guess...
Posted on Twitter about an hour ago:
#MECFS patients who follow me- please hold on. 2016 is going to be an important year. Don't give up. I know it's hard- do not lose hope.
From Cort:
This drug could have some therapeutic potential for us. These are exciting times!
http://mitochondrialdiseasenews.com/2016/01/15/potential-drug-primary-mitochondrial-myopathy-granted-fda-fast-track-status/
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