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  1. Folk

    I'm shredded... Kind of... Does that make sense?

    I was diagnosed with fibro something like 12 years ago. I have a loooot of pain, allodynia etc. I got really worse in 2015 when for months I couldn't get out of bed, I was so much in pain I couldn't use sheets on my skin or it would hurt like hell, it took me a year without leaving my house to...
  2. Folk

    New protocol for Sibo from Dr. Kaufman (Damn it's complicated)

    I didn't do it. I fortunatelly got a lot better. With so much ups and downs I can't even recall exactly what did for me this time. But I think taking Betaine and Pepsin before eating was crucial. I also ate a lot less for some period. I did take some abx after that and it helped, but still that...
  3. Folk

    If not even Lady Gaga could do it, how the hell can we call attention?

    She said only Fibro But you see I have both Fibro and ME/CFS dgx... And I'm not sure whether I have both, one of them or none. The more I look into SIBO and gut issues, the more I think it can cause the same symptoms as Fibro or ME. So it's the same old problem of which doctor did you go...
  4. Folk

    If not even Lady Gaga could do it, how the hell can we call attention?

    I always though we just need a HUGE celeb to openly say and show how debilitating ME or FMS can be. Lady Gaga did that and nothing changed. I mean I have a youtube with 700k Subs and it's my main job, I always though, reaching a certain number of subscribers (like a million) I could make a big...
  5. Folk

    Freedom To Question Vaccines

    I agree with you on questioning everything you put on your body (or take it off from it) I don't agree with anti vaxers for healthy individuals, I would vacine my son for example. But I don't take vaccines anymore...
  6. Folk

    New protocol for Sibo from Dr. Kaufman (Damn it's complicated)

    Ok, you'll have to educate me a lot more (if you have the time of course) I've been to more than 400 Drs. and Dr. Kaufman is the only one I trust. He's dedicating his life to that. I get some of your concerns and others not. I feel like fungi might be my culprit. But Dr. Kaufman gave me this...
  7. Folk

    New protocol for Sibo from Dr. Kaufman (Damn it's complicated)

    Just got off my appt with Dr. Kaufman. Last time we spoke the protocol was just Rifaximin and Vancomycin for 15-30 days. Now it seems there's a lot going on. Anyone had any experience with all that? InterFase Plus, Xifaxan (Rifaximin), Lovastatin, SBI Protect (an oral gammaglobulin product) and...
  8. Folk

    Resource Reboot your Microbiome (Orthomolecular)

    Xifaxan is the same as Rifaximin which is used for SIBO. I took it twice also. The first time (with neomycin) not much improved the second time (with vancomycin) I noticed 100% improvement stomachwise, but as soon as I stopped everything came back. But people talk a lot about Rifaximin for cfs...
  9. Folk

    Resource Reboot your Microbiome (Orthomolecular)

    I don't belive almost anything orthomolecular has to offer but I believe if there's a way to reboot your microbiome you have the closest thing to a panacea. I really think the most promissing thing for us is FMT, although for lack of study we don't know if with antibiotics previously or how many...
  10. Folk

    OMG Phoenix Rising Sucks

    It's sad Health Rising is so empty lately. (Can't complain, I was one of the most active participants and I left when I got better, even though I came back to leave a testimonial) We had a pretty active forum at the beggining here. Glad Cort still doing an amazing job at the front page.
  11. Folk

    How hard is it to do a Study? (off Labs)

    I have a big Youtube channel (it's my job). I work mostly with self improv content (in portuguese) but my next step is to try and make social experiments.... Everybody has done that kind of stuff on youtube, it's not a "valid" experiment most of the time. But that got me thinking, how hard is...
  12. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    Thankfully I'm feeling way way way better. Not getting tired after eating anymore, and just mild pain sometimes. Getting back I wonder how many times I'll be able to fall and recover. But once again it seems I got away....
  13. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    Well, I was basically homeboumd before the drugs, and after I was leading close to a normal life, with my own business, working out etc. So it's a choice (or lack of)
  14. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    REALLY scared though. Brainfog came back for the first time in years. And that's the worst symptom of this disiease in my opinion, and always gut related for me. I saw a gastro and I'm taking Nitazoxanide (for parasites, even though I know it's not the problem) and Dexlansoprazole for gut...
  15. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    Not taking probiotics at the moment. I'm really afraid of taking it. they never helped me and a lot of times made things worse. I did take some digestive enzymes but didn't help much. Some meds help me with the stomach pain, like antiacids and similar stuff. But not with the drowzyness and...
  16. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    I take cetotifen, claritin and zyrtec everyday for MCAS. I don't know if they're H1 and H2 but I belive they are.
  17. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    So I had Both FMS and ME diagnosis. But was under control, leading close to a normal life with a my own business and working out 3 times per week 2-3 weeks ago I started having stomach aches afters eating (I was doing keto for a looong time and was cutting out most greens with huge improvement...
  18. Folk

    Is Klonazepan a necessary evil?

    Yeah reading the "its worse to tapper off than heroin" just makes me want to stay on it.... I've taking for 4 years and i only take for sleeping but I've never increased past 20-25 drops (I only take 30 drops when in I'm somewhere hard to sleep or with someone else in my bed) So thats...
  19. Folk

    Anyone here under Dr. Kaufman's care tried his Abx +Statins combo?

    No, actually my problem isn't the statins nor exactly the abx. The problem is I already took the abx 30 days course 2 times. The last time worked like a charm. I feel like I found something that fix my constipation for good. So now I just have to be careful not to waste it... Like if I overuse...
  20. Folk

    Anyone here under Dr. Kaufman's care tried his Abx +Statins combo?

    I have a lot of food intolerances... But I don't even know all of them... I mean I know I have fructose malabsorption, that's for sure, even on paper. I get very bad stomach pain with coffee. But that's just the most obvious 2. I have somehow problems with mushrooms, and other things that...

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