Search results

Search the forum Search Health Rising Blog
  1. Folk

    I'm shredded... Kind of... Does that make sense?

    I was diagnosed with fibro something like 12 years ago. I have a loooot of pain, allodynia etc. I got really worse in 2015 when for months I couldn't get out of bed, I was so much in pain I couldn't use sheets on my skin or it would hurt like hell, it took me a year without leaving my house to...
  2. Folk

    If not even Lady Gaga could do it, how the hell can we call attention?

    I always though we just need a HUGE celeb to openly say and show how debilitating ME or FMS can be. Lady Gaga did that and nothing changed. I mean I have a youtube with 700k Subs and it's my main job, I always though, reaching a certain number of subscribers (like a million) I could make a big...
  3. Folk

    New protocol for Sibo from Dr. Kaufman (Damn it's complicated)

    Just got off my appt with Dr. Kaufman. Last time we spoke the protocol was just Rifaximin and Vancomycin for 15-30 days. Now it seems there's a lot going on. Anyone had any experience with all that? InterFase Plus, Xifaxan (Rifaximin), Lovastatin, SBI Protect (an oral gammaglobulin product) and...
  4. Folk

    How hard is it to do a Study? (off Labs)

    I have a big Youtube channel (it's my job). I work mostly with self improv content (in portuguese) but my next step is to try and make social experiments.... Everybody has done that kind of stuff on youtube, it's not a "valid" experiment most of the time. But that got me thinking, how hard is...
  5. Folk

    After I eat I get REALLY tired and have to sleep like 4 hours.

    So I had Both FMS and ME diagnosis. But was under control, leading close to a normal life with a my own business and working out 3 times per week 2-3 weeks ago I started having stomach aches afters eating (I was doing keto for a looong time and was cutting out most greens with huge improvement...
  6. Folk

    Is Klonazepan a necessary evil?

    I've been taking Klonazepna for the last 4 years or so. Started with 1mg and went up to arround 2-2.5mg (when I got there I noticed was increasing to much so I stopped and started going back and forth) Klonazepan did something nothing else did. Made me have way less nightmares (like a normal...
  7. Folk

    Anyone here under Dr. Kaufman's care tried his Abx +Statins combo?

    So I took 30 days abx (Vancomycin and Rifaximin) and it went amazing. Constipation completely gone, gut probably (i don't even know anymore) back to normal. But soon after I stopped it stopped working... So now Dr. Kaufman said I should take it again with some kind of statin (he mentioned which...
  8. Folk

    So 30 days abx Course went amazing...

    I just finished a 30 (actually was something like 27 days) Rifaximin + Vancomycin abx course (it's the second time I do it, the first time was Rifaximin with Neomycin and I had no results) Now the results were amazing, I had perfect bowel movements almost everyday, sometimes twice daily. I'm...
  9. Folk

    Rifaximin + Vancomycin. I'm afraid.

    I was prescribed Rifaximin + Vancomycin for my SIBO. That'll be the second time I take Rifaximin, the last was 2 years ago with Neomycin. Ok so, there were no problems but also not much improvemenet that time. I felt like i was finally getting good improvement in the end of the treatment like...
  10. Folk

    Poll Cold vs Hot Showers

    I wouldn't make it a poll as my feelings would be hot shower would win just because most people never tried Cold showers, so I added the option "never really tried cold showers etc...". So if you didn't compare them both please choose this one. I use to think hot showers was the only thing...
  11. Folk

    Wim Hof Method. Regulate your own autonomic nervous system. (No Woo Woo)

    Anyone here familiar with Wim Hof Method? For those who aren't, here's a video explaining it: Wim Hof is a guy that holds 26 world records. Most of them including ICE and Apneia. Like Climbing Everst with nothing but shorts. Runing a full marathon (42.195 kilometres (26.219 mi)), above the...
  12. Folk

    What happened to fecal transplants?

    It seemed such a promissing treatment for at least a subset of us. It had 95% sucess in eradicating C. Dif. completelly. A disease that until that moment would had a high % of death rates. I remember it was kind of forbiden until more studies were done etc etc. Then it was kind of legalized...
  13. Folk

    CARNIVORE (no plants) diet (yeah it's supposed to be shocking ^^)

    By CARNIVORE I mean only meat (and meaty products) and water. That's all So it's seems its catching slowly. But deffinetelly becoming a trend. There are some studies I'll link later. And a lot of anedoctal evidence that we not just don't need vegetables but they are bad for us. All the toxins...
  14. Folk

    Need some help please. I think I'm having a small relapse.

    So. I shared a while ago my "recovery story". I certainly wasn't cured but I was living really close to a normal life. Including small trails in the nature, jumping into waterfalls, going to the beach, photographing etc. Exactly a year ago I did the "biggest test" which was carnival in Rio. it...
  15. Folk

    Bartonella, Lyme, Galaxy Lab, Igenex. Dr. De Meirleir, Dr. Kaufman etc... Where are we heading?

    So. Things are getting strange, confusing. Where are we heading? When I got near to the extreme side of this disease I went to belgium to se De Meirleir. I already knew my dgx would be Lyme. He tested me for lyme and a lot of other things. It was done in 3 labs, came back kind of positive...
  16. Folk

    Hard time sleeping, againgaingain

    So I was sleeping late, really late, like 6-7 in the morning but I could sleep for 6-7-8 hours. If I didn't set my alarm and was really tired I could sleep for 12 hours sometimes. But i was actually sleeping arround 6 hours cause I use to set my alarm to wake me up. I was taking Konoplan before...
  17. Folk

    Topical Capsaicin for Fibromyalgia/Allodynia

    Helo! Anyone here have any experience with Topical Capsaicin for Fibro/Allodynia pain? In my case would be more for Allodynia, although it's kind of a atypical case. The lightest touch (clothes, hair), when lingers for a period, hurts me but not my skin, it hurts my muscle. I don't know if...
  18. Folk

    Coq10 withdrawl?

    So I was taking Coq10 for like a month, starting with 50mg, up to 100mg and then 150mg. I stopped cause I thought it was giving me a metallic taste in mouth. Turns out ever since I stopped my body pains got a lot worse. I'm sleeping like the whole day. I wake up, eat and then have to go back to...
  19. Folk

    My recovery after my one and only crash.

    So my symptoms started 10 years ago, when I was 17. I'm 27 now. First I had just some neck pain after piercing my ear and having to sleep on one side for a month. I thought it was just a stiff neck or something, but it never went away. At that time, I was going to the gym, and my lower back and...
  20. Folk

    Metllic Taste in Mouth

    So, I've been having this metallic taste in my mouth for the past 3-4 days. It's really really intense and the more I brush my teeth/tongue the worse it gets. It's on the back of the tongue. The only new medication I'm taking is Coq10 wich I stopped yesterday hopping it would help, but the...

Get Our Free ME/CFS and FM Blog!



New Threads

Forum Tips

Next tip

Support Our Work

DO IT MONTHLY

HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT

Shopping on Amazon.com For HR

Latest Resources

Latest Videos

Mast Cell Diseases
Tom Camenzind's Story. ME/CFS Alert Episode 93 - YouTube
The Science of Sleep: Melatonin to Neural Pathways - YouTube
ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube
Simple But Effective Tools for Management of ME/CFS and FM - Lucinda Bateman, MD
Ginevra Liptan - Segment 1: The Pros and Cons of medical Marijuana Use of Fibromyalgia Patients - YouTube
Cognition & CFS: What Do We Know? - YouTube
Understanding Mast Cell Activation Disorders - YouTube
"Bodywork: Tai Chi, Qui Gong, Yoga" Colin Gates - YouTube
How The Gut Microbiota Affects Our Health with Dr. Erica & Dr. Justin Sonnenburg - YouTube
Wellness Wednesday: How to Heal Your Gut Bacteria with The Sonnenburgs - YouTube
Dr. Justin Sonnenburg: Gut inflammatory trajectories and treatment of chronic disease - YouTube

Sponsors

Share this page

Top