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Bitten : The Secret History of Lyme Disease and Biological Weapons by Kristen Newby
One more important comment : You know about ivermectin and hydroxychlorine ? The first med probably saved my lIfe when I got Covid in Jan. 2022. Amazing, quick recovery ( after dose 2) after my oxygen sat dropped to 89%. No long Covid. No second infection despite 5 plane flights last year ...- Merida
- Post #16
- Forum: General Discussion
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Bitten : The Secret History of Lyme Disease and Biological Weapons by Kristen Newby
Hi LA2SD ! I am months behind. Hard to sit long at my computer. I have not heard anything about Lyme being in vaccines - too risky for the bad guys as someone would detect it I think. I have not made much progress. I have some crazy dysautonomia ( dx by neurosurgeon) that went into full swing...- Merida
- Post #15
- Forum: General Discussion
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30 years of ME, struggling to cope please help
Michelle - I have dealt with this illness for 25 years, and led a large support, speaker based group at the local hospital for 13 years. My background is clinical diagnostic microbiology. Enough said - appreciate I am a careful observer, researcher. I had an article published in Fibromyalgia... -
Almost crippling breathing problems?
Severe breathing /breathless issues : These kinds of severe symptoms can be associated with Chiari malformations and related disorders. This diagnosis takes a neurosurgeon familiar with Chiari consult and carefully done MRIs. -
Almost crippling breathing problems?
Shortness of breath : have you had a complete cardiac workup ????? Also, Chiari /syringomyelia issues can include shortness of breath. An expert neurosurgeon is needed for diagnosis. ( yes - I had 3 expert workups by neurosurgeons : Chiari 0, tethered cord - both critical to all symptoms) -
Resource The Craniocervical Junction - Overlooked and Underestimated in Importance ?
HI New Members, @bobnajera and @MadeleineTD - Gee I haven't been on site for many months - fatigue and not being able to sit upright at computer for very long. I am glad you found this article important. I have been reading a lot about spinal fluid leaks, and think this is another potentially...- Merida
- Post #3
- Forum: Other Research
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High intracranial pressure symptoms anyone?
Susie, Your comment is so very much appreciated ! I have glycerin here now - use it along with Dawn dish soap to make the most fantastic bubble solution ever for the grandkids - who are in awe of Grandma's bubbles. I have been writing about structural issues as a source of symptoms for years...- Merida
- Post #60
- Forum: General Discussion
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Almost crippling breathing problems?
Hi Issie ! Thanks for the information. Lyme and co-infections are certainly insidious and cause profound issues in many systems. My blood pressure was stable for my entire life, then about 4 years after the tick bite I started having erratic blood pressure - shooting high, 'white coat syndrome'... -
Almost crippling breathing problems?
David, late to reply, but thinking about your comment. Part of the problem is that the Lyme bacteria manipulates the immune system. ( Kindly told this by Dr. Eva Sapi, researcher, expert) The other problem is that there are so many co-infections : Babesia, Anaplasmosis, Bartonella, more. I... -
Almost crippling breathing problems?
Yes, I also have trouble with Probiotics. Problem is, the bacteria you introduce are not your own. My immune system seems so sensitive that these foreign bacteria cause upset. -
Almost crippling breathing problems?
Gee make sure the panel includes the IgG Western Blot. My 'screening' was negative even though I had a known Virginia tick bite with rash in 2010. A naturopath finally did the complete panel ( IgM/ IgG Borrelia burgdorferi ) and I have 5 positive IgG bands - positive by strict CDC criteria. -
Prednisone helps my fatigue
@debs Oh, I think you are so right. I have been here in San Fernando Valley ( northern L.A.) for 45 years - hot, dry - only a few local Culex mosquitos in early spring after a rainy year. My husband and I sit outside each afternoon. During the week of Sept. 30, 2018 ( after 5-6 months of NO...- Merida
- Post #17
- Forum: General Discussion
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Prednisone helps my fatigue
@cujet I read that your illness started with EBV at age 33. My son started having problems at age 5, 1986, after well - documented ( IgM / IgG panels ) case of EBV. He is still having issues with stress and otherwise today. EBV is known to target thyroid gland. But here is another issue : my...- Merida
- Post #15
- Forum: General Discussion
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Potential linking RBC, glycolysis, air hunger, thyroid, ATP dumping, pregnancy improvement and...
@Issie Sending big Hugs in the form of electromagnetic waves. I am in a crazy place. Big cardiovascular stuff - low oxygen at nite, and low blood pressure. High blood pressure in the am. Normal rest of day unless at doctor’s appt. ( same doc 15 years - high BP only last 4 years), breathlessness...- Merida
- Post #10
- Forum: General Discussion
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Potential linking RBC, glycolysis, air hunger, thyroid, ATP dumping, pregnancy improvement and...
@dejurgen @Issie So glad you two are still working on this. I will add my 2 cents. I think the family history is important - my Mom and her maternal line, me, my son - all affected. Years ago I kept testing low for lactate dehydrogenase. 60-70 % of normal. I found 2 research articles...- Merida
- Post #8
- Forum: General Discussion
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Almost crippling breathing problems?
I will add the bit that I have learned. Shallow breathing can be an autonomic issue. For me, it initially came from a neck and thoracic issue. ( injured by a chiropractor, 1998, who ‘ adjusted’ my neck and thoracic area for a sore right hip - no CFS/ FMS prior to this injury). But in more... -
Poll How Much in Lost Wages Did Fibromyalgia and/or Chronic Fatigue Syndrome Cost You This Past Year?
@cujet Just upright at my computer for a few minutes and saw your post. Any chance you have Lyme or co-infection ? I had a known tick bite in Virginia ( 2010, with rash) but was negative on the screening. My doc forgot about it. But a naturopath diagnosed me in 2017 - did full Western Blot with...- Merida
- Post #61
- Forum: General Discussion
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Potential linking FM, mast cells, sleep deprivation, food intolerance, exercise intolerance and ME?
@Issie - Yes, we are different in other ways. I suspect in ancient times we were the ones that helped the tribe - with certain 'knowing' and foresight and insight. I expect there are wonderful intellectual/other gifts in your family too. My brother was a structural engineer, with Dick corp, and...- Merida
- Post #23
- Forum: General Discussion
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Potential linking FM, mast cells, sleep deprivation, food intolerance, exercise intolerance and ME?
@Issie Thank you for the detailed look at attempted improvement. Yes, the Chiari surgeries are only about 50% effective, so the specialists are trying to figure out who will do well with surgery. No surgery for me. Had 2 invasive procedures and got worse. I also think dopamine is an issue...- Merida
- Post #21
- Forum: General Discussion
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Almost crippling breathing problems?
@David Tyrer @roxi I talk a lot about structure, but I now have to consider Lyme disease. Hope you have both been checked for Lyme and coinfections. I had one tick bite in Virginia in 2010 and am positive - CDC criteria. Important - the screening test was negative, but finally got the entire...
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