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  1. Merida

    Bitten : The Secret History of Lyme Disease and Biological Weapons by Kristen Newby

    If you have not ordered your copy of this book, I would highly recommend that you do so. It is a profound read that journeys into a dark and secret world that most Americans have chosen not to think about or know about. A world that has been unacknowledged by medical professionals and...
  2. Merida

    Resource The Craniocervical Junction - Overlooked and Underestimated in Importance ?

    This is a very important article : The Role of the Craniocervical Junction in Craniospinal Hydrodynamics and Neurodegenerative Conditions, written by Michael Flanagan, D.C. - a chiropractor with special training in neurology and physical anthropology/ skull structure. Here is the link ...
  3. Merida

    Adhesive Arachnoiditis: A Significant Cause of Post Exertional Malaise ?

    https://www.practicalpainmanagement.com/pain/spine/arachnoiditis-diagnosis-treatment I have been exploring the potential role of the sacrum and pelvis in the causation and promotion of Fibromyalgia and Chronic Fatigue Syndrome for nearly 20 years. For me, this long nightmare of fatigue, pain...
  4. Merida

    Resource Chiari Research Update July 2018

    Top 10 Research Findings of the CCRC Conquer Chiari’s monthly research updates highlight and summarize interesting publications from the medical literature while providing background and context. The summaries do contain some medical terminology and assume a general understanding of Chiari...
  5. Merida

    Rethinking Ehlers Danlos Syndrome

    Because of this forum I read an article in a medical journal and wrote to a researcher in another country concerning the many structural issues that I have, and run in my family, as possibly related to chronic fatigue and chronic pain. The researcher ( an M.D. and Ph.d.) kindly wrote back and...
  6. Merida

    Sacrum/Pelvis/ Scoliosis Connections

    Just last week I got a call from a woman seeking a FMS/ CFS support group information and treatment resources. Unfortunately I closed my group 5 years ago, after leading it for 13 years. But sometimes I still get calls, and share information I accumulated through the years. And, I make sure they...
  7. Merida

    Fibromyalgia FMS and spinal fluid pressure dysregulation

    A new study from Belgium researchers ( Hulens M et. al. Fibromyalgia and Unexplained Widespread Pain: The Idiopathic CSF Pressure Dysregulation Hypothesis. Med. Hypothesis 2018. Jan; 110: 150-154) links widespread pain to abnormal CSF pressure which floods the nerve sheaths of nerve roots and...
  8. Merida

    Has anyone tried the Pridgen protocol?

    I just printed and read Dr. Pridgen et al. published study from last year. Wow. Makes a lot sense. I am taking this research to my infectious disease doc and plan to try it. I appreciate that I have structural issues that 'run' in my family. However, I recall my son's experience at age 5. Got...
  9. Merida

    Resource Research of Dr. Alan MacDonald, pathologist, Harvard Brain Bank

    As a result of being diagnosed with late stage Lyme ( from a tick bite in 2010/Virginia) I have listened to the entire NorVect conference (2014) and to the videos of Dr. Alan MacDonald. His understanding and research scope of the potential of Borrelia to wreak havoc in all parts of the human...
  10. Merida

    Multiple Chronic Active infections - Lyme, EBV, Chlamydophila pneumonia, with a side of porphyria?

    I finally saw a naturopath and got tested for all of the above organisms, as well as Mycoplasma and HHV6. Well, I have had them all. He used standard labs - Lab Corp for Lyme and Quest for the rest. Yes, I was bitten by a tick in 2010 in Virginia, and I have chronic lyme according to the CDC...
  11. Merida

    Chronic Fatigue X Files

    Those who have read my many posts of last year and earlier may appreciate that I , like many of you, have looked very closely at, and followed the hard science of CFS/FM. I did orignal medical research as early as high school - in conjunction with the University of Pittsburgh, got my B.Sc. In...
  12. Merida

    Small posterior fossa, EDS, related issues

    Merida submitted a new resource: Small posterior fossa, EDS, related issues - Michael Flanagan, D.C., neurological chiropractor Read more about this resource...
  13. Merida

    Resource Vitamin and Cofactors for the Treatment of Mitochondrial Disease

    Merida submitted a new resource: Vitamin and Cofactors for the Treatment of Mitochondrial Disease - The Spectrum of Mitochondrial Disease by Robert K. Naviaux, MD, PhD Read more about this resource...
  14. Merida

    Red Blood Cell Shape and Function

    in 1989 researcher Leslie O Simpson published research that ME patients exhibited marked morphological abnormalities in their red blood cells. ( Nondiscocytic erythrocytes in myalgic encephalomyelitis. N Z Med J 102( 864) : 126-127. 1989) ME patients had a significantly lower per cent of the...
  15. Merida

    NIH reports: 80 to 90 % of people diagnosed with FMS are women.

    Let's brainstorm. Why do women get FMS ( and I presume CFS/ME) so much more than men?
  16. Merida

    Ancient Aliens Interviews Ian Lipkin/Jeffrey Galpin

    Who has seen the Ancient Aliens program aired June 26, 2015 : Aliens, Plagues, and Epidemics? Ian Lipkin is interviewed at the very end. He makes a few innocuous comments about the staggering number of different microorganisms on Earth. Jeffrey Galpin, MD ( board- certified in internal medicine...
  17. Merida

    Could there be a blood vessel problem?

    Recently I learned of a disease called fibromuscular dysplasia. It is a non-atherosclerotic, non-inflammatory disease of blood vessels that causes abnormal growth in the artery wall. Middle aged women are most commonly affected, but men and children can also have the disorder. The renal and...
  18. Merida

    Scoliosis - Not Always an Incidental Finding?

    Scoliosis and CFS/FM "run together" in my family. The prevalence rate for scoliosis in US adults is about 8%. Many people in my support group reported scoliosis, with one leg ( usually left) shorter, and sacral/pelvic pain. This observation is supported in The Fibromyalgia Syndrome: A Clinical...

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