Have you tried contacting the European Commissioner for Health and Food Safety, Vytenis Andriukaitis who is also Lithuanian Commissioner to the EU? Someone ought to be telling him the history and current events (eg,PACE-wise) of ME, including in re Karina Hansen. I first came across his name due to a very brave and positive role he had played in when in the Lithuanian parliament about facing (accurately) the country's history in the Shoah. (He has since become better known due to a viral video of his face pan at Nigel Farage's garbage speech in the European Parliament.)
Sorry for the delay in replying , from memory (and in short), I tried the European commission via their invitation to make a suggestion re possible things to fund under Horizon 20?? or whatever the current funding round is titled I was told that this was not the sort of thing the would fund. I'm not kidding or misquoting I replied that since it ticket the criteria "health" i.e. affecting 1 million people then I couldn't see how it didn't meet the criteria. It also ticks other criteria re innovation in healthcare and social policy (exclusion of people with ME/CFS from society). I did feel that reciting their own policy as justification may have caused then to resent the suggestion; hence my suggestion that someone else tries. Also, I'm in the UK and the UK is leaving Europe, so not much leverage there.
Linda Tannenbaum (CEO/President OMF) spoke in Northern Ireland a few months ago and (from memory) seemed to suggest that validating the blood test (metabolmics - Mass Spectrometry) was on the OMF's cards. So, if they can deliver a validated test then that would in my view move things on. Still, in my view worth, try Europe and the UK All Party Parliamentary Group etc to see if they could progress this or fund further work on a blood test.
Possibly challenging the European Commission stance on SOCIAL MEDIA is the way to go i.e. their stance that funding research to develop a blood test for ME/CFS (which affects roughly 1 million EC citizens) is not the sort of thing they do. Same goes for the UK All Party Parliamentary Group on ME.