Heart Wrenching Letters for Meeting with Government Officials Mar 23/17 in Ottawa Canada

Discussion in 'ME/CFS and FM News' started by Jill T, Mar 16, 2017 at 9:38 PM.

  1. Jill T

    Jill T Active Member

    From Millions Missing Canada:

    Patients and Advocates Connecting With Ottawa Officials

    The Myalgic Encephalomyelitis Crisis in Canada will be Discussed at a meeting with officials in Ottawa on March 23rd, 2017.


    Please go to this link for more information:

    https://www.facebook.com/notes/millionsmissing-canada/the-me-crisis-meeting-date-set/403050056723389


    We’re encouraging Canadians with ME and their loved ones to let Minister Philpott know how excited and hopeful we are about this meeting to stop the harm, start the research and start the treatment by sending her messages of gratitude and thanks via Facebook, Twitter and email.

    Send your own positive message or share one of ours found below.

    Sample Messages To Send Out:

    ______________________________________________________

    For Facebook: @janephilpott


    https://www.facebook.com/janepaulinephilpott/#


    Go directly to Minister Philpott’s page, tag her, and post this message:

    Jane Philpott Thanks so much for meeting with patients and advocates from the ME community about the Myalgic Encephalomyelitis crisis in Canada. We are looking forward to your help in getting us access to medications like Ampligen and antivirals.​

    ______________________________________________________

    For Twitter: @janephilpott

    https://twitter.com/janephilpott

    Thanks for meeting about the ME Crisis in Canada. Looking forward to solid productive solutions for us @janephilpott #MyalgicE #pwME

    ______________________________________________________

    For EMail:


    Hon.Jane.Philpott@Canada.ca

    Dear Minister Philpott,​

    Thank you so much for meeting with ME patients and advocates to discuss the crisis in Canada affecting over 400K Canadians severely ill with Myalgic Encephalomyelitis.​

    We very much look forward to your help to stop the harm of contraindicated treatment and start the research with fair funding.​

    Sincerely,​
    xxxxxxx​
    ______________________________________________________
     
  2. Jill T

    Jill T Active Member

    Last edited: Mar 18, 2017 at 4:47 PM
  3. Jill T

    Jill T Active Member

  4. Jill T

    Jill T Active Member

    From Millions Missing Canada:

    Letter #2 to be delivered to Ottawa and Minister Jane Philpott's office this week.
    Oh, the hoops we have to jump through and the acrobats we’re expected to perform! Those with ME who have battled insurance companies will be able to relate to this letter.
    Thanks for sharing your story!

    [​IMG]
    GraphicForLetter2.png

    THE ME CRISIS: A Long Fight for Correct Diagnosis

    MILLIONSMISSING CANADA·SUNDAY, 19 MARCH 2017

    An Even Longer Fight for LTD, Dignity and Respect
    https://www.facebook.com/notes/mill...g-fight-for-correct-diagnosis/400322973662764
     
  5. Jill T

    Jill T Active Member

    From Millions Missing Canada:

    A Talented Artist Tumbles Hard
    ME is no respecter of persons. It fells anyone at anytime and can strike overnight. The young, the strong, the fit, the healthy – no one is exempt from it.
    Letter #3 to be delivered to Ottawa and Minister Jane Philpott's office this week.
    Thanks for sharing your letter with us Jasmine Sanchez Ziller!
    GraphicForLetter3Jasmine.png

    THE ME CRISIS: A Talented Artist Tumbles Hard With ME

    MILLIONSMISSING CANADA·MONDAY, 20 MARCH 2017
    University is Abruptly Halted by ME Sidelining Dreams, Ambitions and Life Itself

    https://www.facebook.com/notes/mill...d-artist-tumbles-hard-with-me/404764089885319
     
  6. Jill T

    Jill T Active Member

    From Millions Missing Canada:


    For ‘Lifers’, those who have lived with ME for 25+ years, it truly is a life sentence. One pays the time without doing the crime. Surviving that long with ME gives one a completely different perspective about so many things!
    Letter #4 to be delivered to Ottawa and Minister Jane Philpott 's office this Thursday.
    Thanks for sharing your letter with us!

    GraphicForLetter4Lifers.png

    THE ME CRISIS: ‘Lifers’

    MILLIONSMISSING CANADA·TUESDAY, 21 MARCH 2017
    Our Collective Cry is “Open the Doors For ME!”

    “Excuses for the negligence of our government towards ME can be tolerated no longer”


    https://www.facebook.com/notes/millionsmissing-canada/the-me-crisis-lifers/404346696593725
     
  7. Jill T

    Jill T Active Member

    From Millions Missing Canada:

    Getting Justice for Justin!
    Justin Noble was an advocate for ME health care. Our health care system in Canada failed Justin in the worst of ways. He died October 13, 2016 at just 31 years old.
    We dedicate this meeting tomorrow in Ottawa to him.
    GraphicForLetter5Justin.png

    THE ME CRISIS: Justin’s Prophetic Words About Living With ME

    MILLIONSMISSING CANADA·WEDNESDAY, 22 MARCH 2017
    “At 30 Years Old I Live in Fear for my Future Because so Little is Done and No Treatments are Available.”

    One Week Later - Justin Was Dead
    https://www.facebook.com/notes/mill...c-words-about-living-with-me/401942800167448/
     
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