The NIH ME/CFS Roadmap Metabolism Webinar – Duration Matters, Exhausted T-Cells, Abnormal Lipids and Muscles
The Metabolism webinar is part of the ME/CFS Research Roadmap effort. The effort was put together by Dr. Koroshetz and Vicky Whittemore as a way to advance chronic fatigue syndrome (ME/CFS) research at the NIH. The Roadmap effort was conceived pre-COVID, then was...
Struggling Long COVID RECOVER Initiative Gets $500 Million Lifeline
Recovering RECOVER? They had to do something. With the money running out next year, the NIH and its RECOVER Initiative were looking at pulling the plug on over 80 clinics and kissing the $1.15 billion Congress had invested in the program goodbye - all the while hardly...
Rachel’s Valentine’s Day Brownie Recipe for People with ME/CFS and Chronic Illnesses
I recently wrote about Rachel Riggs' forthcoming cookbook for people with ME/CFS and similar chronic illnesses and her commitment to donate the royalties to OMF. This cookbook is unique. Its goal is to create the possibility of good-tasting food for people with food...
The Nanoneedle for ME/CFS is Back!
"We posit that this assay can potentially offer an outstanding biomarker to rapidly and inexpensively diagnose ME/CFS with high accuracy. In addition, this assay may offer a remarkable opportunity for the discovery of new treatments for this debilitating disease." ...
ME/CFS, MCAS and Gynecological Disorders – Klaus Wirth’s Blood Vessel Diseases
People with chronic fatigue syndrome (ME/CFS) are not alone. Nor are people with fibromyalgia (FM) or dysautonomia or migraine. We all exist in a swirl of allied illnesses. ME/CFS experts recognize that, but researchers who typically get trapped in disease silos - not...
Unraveled #3: Ruhoy and Kaufman on Idiopathic Intracranial Hypertension in ME/CFS and Complex Diseases
This blog follows the discussion between two ME/CFS experts, Dr. Ilene Ruhoy and Dr. David Kaufman, on their March 8th, 2023 edition of their Patreon channel: Unraveled. Two chronic fatigue syndrome (ME/CFS) experts; Dr. Kaufman – an internist - and Dr. Ruhoy – a...
Amantadine – A Fatigue Reducer for Long COVID and ME/CFS?
It seems a bit odd that we haven't heard much about amantadine (Gocovri, Symadine, and Symmetrel) in chronic fatigue syndrome (ME/CFS) or long COVID. They are, after all, the two big fatiguing diseases on the planet, and amantadine is the go-to drug for fatigue in...
Vaccines and Long COVID: Protectors or Exacerbators or Both?
Will we ever get away from the vaccine question? Probably not but at least we're getting studies on their effects not just on COVID-19 but on getting long COVID and even healing from it. While they're not on chronic fatigue syndrome (ME/CFS) they're particularly...
From Skeptic to Advocate: Wes Ely, Long COVID, ME/CFS and his Big Baricitinib Trial
Thanks to everyone who supported Health Rising during its fundraising drive! We will report the results in about a week 🙂 What a heartening story Wes Ely MD, MPH is. He's precisely the kind of researcher we want studying long COVID (and ultimately, ME/CFS. Given how...