AcH influenced
Member
Maybe more people will start to be interested in what is going on with some of us who have red skin effects in ME/CFS or Long Covid if I show you some more examples of persons you probably already know other than Dianna Cowern in my other post.
What is important is if these red skin effects go together with the ME/CFS or Long Covid , if you developed them when falling ill. Or if you notice changes in redness or flushing or maybe even possible flushing bodily feelings effects in your state of illness.
Then this phenomena can be linked to a possible cause of your illness, or at the minimum a part of it for many.
If someone is dismissive of these red skin effects or flushing episodes and such and sees them as not important (a medical professional, a researcher, I don't care who they are) disregard it for they are clueless.
I have had 3 doctors who took nothing of this seriously and two doctors who told me something like "oh well there are so many red people out there...) when I mentioned my redness developing as a symptom next to my many serious physical symptoms, and more importantly other also visible body and skin changes. And I was completely red skinned from head to toe like a lobster..... with severe flushing on top of it (just don't ask me what I think of doctors these days.)
It is in the combination with the symptoms of illness why it is important. For example just as flushing/redness is a symptom that should be taken serious in a suspected case of Carcinoid syndrome, pheochromocytoma or Mastocytosis disease in conjunction with the other symptoms. It is not a trivial meaningless symptom.
And in my case, with practically all the ME/CFS symptoms out there to be expected, this is caused by permanent low level mast cell activation with some extra varying activation on top of it. Flushing/redness not because of the disease Mastocytosis but still a mast cell effect.
Now obviously there are indeed people who are a bit red skinned or can flush and who are perfectly healthy. Yes it can be a normal reaction. Some people are like that. You come out of the cold and you look red, all that is very normal. And all sorts of other reactions / diseases etc. But that is not the same thing I am talking about.
It is also important to note that if you yourself are ill but not red at all that it doesn't mean you don't have the same thing ME/CFS or Long Covid wise as a cause. So you can still have the same disease without it. The reason for this is individual differences. Some people are more natural "flushers" and are more susceptible to this than others so it shows, but that may not be the case for you. So don't dismiss it too easily as not applicable to you. A possible positive if you have it, but not necessarily a negative if you don't have it. I can explain that in some more detail in the future.
But if the redness is there well if you ever wanted to study a group of people (cohort) in ME/CFS and Long Covid who share a certain, in this case even visible symptom, here is one for you.
There is much more to say about this but let us look at some more red persons, maybe people will take it more serious and recognize it more as a symptom.
Do you know more possible examples in the public domain out there? Why not post them here? I doubt the people involved would have a problem with it if it helps to have even a remote minimal chance of understanding a possible mechanism in ME/CFS and Long Covid.
What is important is if these red skin effects go together with the ME/CFS or Long Covid , if you developed them when falling ill. Or if you notice changes in redness or flushing or maybe even possible flushing bodily feelings effects in your state of illness.
Then this phenomena can be linked to a possible cause of your illness, or at the minimum a part of it for many.
If someone is dismissive of these red skin effects or flushing episodes and such and sees them as not important (a medical professional, a researcher, I don't care who they are) disregard it for they are clueless.
I have had 3 doctors who took nothing of this seriously and two doctors who told me something like "oh well there are so many red people out there...) when I mentioned my redness developing as a symptom next to my many serious physical symptoms, and more importantly other also visible body and skin changes. And I was completely red skinned from head to toe like a lobster..... with severe flushing on top of it (just don't ask me what I think of doctors these days.)
It is in the combination with the symptoms of illness why it is important. For example just as flushing/redness is a symptom that should be taken serious in a suspected case of Carcinoid syndrome, pheochromocytoma or Mastocytosis disease in conjunction with the other symptoms. It is not a trivial meaningless symptom.
And in my case, with practically all the ME/CFS symptoms out there to be expected, this is caused by permanent low level mast cell activation with some extra varying activation on top of it. Flushing/redness not because of the disease Mastocytosis but still a mast cell effect.
Now obviously there are indeed people who are a bit red skinned or can flush and who are perfectly healthy. Yes it can be a normal reaction. Some people are like that. You come out of the cold and you look red, all that is very normal. And all sorts of other reactions / diseases etc. But that is not the same thing I am talking about.
It is also important to note that if you yourself are ill but not red at all that it doesn't mean you don't have the same thing ME/CFS or Long Covid wise as a cause. So you can still have the same disease without it. The reason for this is individual differences. Some people are more natural "flushers" and are more susceptible to this than others so it shows, but that may not be the case for you. So don't dismiss it too easily as not applicable to you. A possible positive if you have it, but not necessarily a negative if you don't have it. I can explain that in some more detail in the future.
But if the redness is there well if you ever wanted to study a group of people (cohort) in ME/CFS and Long Covid who share a certain, in this case even visible symptom, here is one for you.
There is much more to say about this but let us look at some more red persons, maybe people will take it more serious and recognize it more as a symptom.
Do you know more possible examples in the public domain out there? Why not post them here? I doubt the people involved would have a problem with it if it helps to have even a remote minimal chance of understanding a possible mechanism in ME/CFS and Long Covid.
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
