Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
Name: Ani W | Years Ill: 5 |
Location: Hobart, Australia | |
Former Occupation: Parenting | |
Current Occupation: Advisor | |
Former Activity Level (0-100): 50 | Current Activity Level (0-100): 100 |
Story: I don't think my answers to some of the questions will quite make sense or fit the format since I… |
Name: JudyH | Years Ill: |
Location: Atascadero, United States | |
Former Occupation: Student | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 50 |
Story: My non-miraculous, extremely slow, non-recovered, successful life, so far I first got CFS … |
Name: Georgie Coghlan | Years Ill: 22 |
Location: Byron Bay, Australia | |
Former Occupation: Interior Designer | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 60 |
Total Projected Economic Losses For Years Not Worked:
A$2,210,234 |
|
Story: I remember being in my late teens and always having a sore back, shoulders, neck and legs. I tho… |
Name: Jennifer McBryde | Years Ill: 53 |
Location: Brisbane, Australia | |
Former Occupation: Airline Flight Attendant | |
Former Activity Level (0-100): 70 | Current Activity Level (0-100): 80 |
Story: My story came to life in an unusual way when I began research into the mystery that lingered in t… |
Name: Corey | Years Ill: 13 |
Location: West Bend, United States | |
Former Occupation: Electrical Engineer - Wireless Design | |
Former Activity Level (0-100): 90 | Current Activity Level (0-100): 50 |
Total Projected Economic Losses For Years Not Worked:
$893,187 |
|
Story: I came down with the Swine Flu and never recovered. It set off an inflammatory cascade in my bod… |
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Lives Interrupted
Lives Interrupted Latest Story
Lives Interrupted Stats
Years of Work Lost: 310
Average Total Economic Losses:
$803,311
Total Economic Losses:
$24,099,343
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.