Fibromyalgia and ME/CFS Spinal Resource Center

Spinal stenosis - Rowe

Spinal stenosis in a person with ME/CFS who recovered following surgery

The idea that craniocervical instability (CCI)/atlantoaxial instability (AAI) (and allied issues) might be causing all the symptoms in some people with chronic fatigue syndrome (ME/CFS) sprang to life in 2018 when Jeff Woods charted his own harrowing but ultimately successful journey back to health following spinal surgery. Since then several well known ME/CFS patients (Jennifer Brea, Julie Rehmeyer) and others have been diagnosed with CCI/AAI and some have had surgery.

Other studies and case reports indicate that other spinal issues such as spinal stenosis, intracranial hypertension and cerebral spinal fluid leaks may all play a significant role in some patients. One study found intracranial hypertension present in most people with ME/CFS.

Blogs

Craniocervical Instability, Tethered Cord Syndrome, etc.

Other Spinal Issues

Survey

Other Sites

MechanicalBasis.org – Jeff Woods shows how structural problems in the spine can produce the symptoms of ME/CFS and provides advice for those exploring this complex issue.  Plus check out Jeff’s amazing story. Jeff also provides a consulting service.

Jennifer Brea’s Medium site – , Jennifer Brea, the creator of Unrest and the cofounder of ME Action, details her craniocervical instability (plus) story – plus provides reviews of spinal study findings that could apply to ME/CFS.

Phoenix Rising Forums 

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