Childhood ME/CFS Prevalence Takes a Hike – Plus Take the Childhood Poll
Leonard Jason and Ben Katz have been concerned that pediatric patients (generally assumed to be from 0-18 years of age) have been given short shrift for awhile. In their 2012 article, "Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome", they highlighted...
Bridging the Gap? Fibromyalgia, Women and Autoimmunity
There's a big elephant in the room in both fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) and it's women. The fact that a lot more women than men have these diseases must mean something, yet except for Dr. Klimas's and Gordon Broderick's modeling in ME/CFS,...
“Left Out”: An ME/CFS Movie of Commitment, Hope and Despair
It was a project birthed in hope. Pal Schaathun, a Norwegian filmmaker would document what he hoped might be the end of chronic fatigue syndrome (ME/CFS). That, unfortunately, turned out not to be but Schaathun ended up documenting - in strikingly beautiful fashion -...
Building It! An ME/CFS/FM Community: An Exploratory Survey
My partner and I both have ME/CFS/FM and we both have special housing needs. She has mold issues and some chemical sensitivities and I have chemical sensitivities. Both these issues can pose considerable problems when renting or buying. Three years ago, my partner...
“Crushing It”: Large Pridgen Fibromyalgia Antiviral Trial Expected This Summer
I was a bit anxious as I waited for Dr. Pridgen to pick up. It had been a year and a half since we talked and I had heard nothing. Given Pridgen's approach - using antivirals in a disease (fibromyalgia) that few connected with pathogens - his startup's name,...
Hacking ME/CFS and Fibromyalgia the OKR Way
Last March, I trudged out to the van to install a solar panel. I'd been fighting a cold but this was something thing I dearly wanted to get done. In general, I felt a little activity had been helpful with colds. This time, it was different. The work took longer than...
ME/CFS Patients Pushing Their Limits – and the NIH – for ME/CFS
The Washington Post is running an excellent story, "Patients push limits for clues to chronic fatigue syndrome", on ME/CFS and the NIH's ME/CFS intramural study. The featured story - of Zach Ault, a father, who while training for a half-marathon, became ill, and now...
The Temporary ME/CFS and Fibromyalgia Recovery Stories – What Can They Tell Us?
In 2015, Dean Echenberg, MD, PhD, a former public health official and Director of Disease Control in San Francisco at the height of the HIV/AIDS epidemic, had a question. His own course of ME/CFS had been anything but smooth. Echenberg had experienced years of illness...
Thanks to Everyone Who Made Heath Rising’s Fundraising Drive a Success – Plus What’s Next
A HUGE thanks to the 383 people who provided $41,902.55 to Health Rising during our year end (and a bit past year end :)) fundraising drive. More people supported Health Rising with more funding than we have ever had before. Besides the donors, a major thanks goes to...
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