Finding the Keys to Long COVID? The Keystone Long COVID Conference Day I
It took about three years but the first major international conference on long COVID - the "Keystone Long COVID and Post Acute Sequalae of SARS CoV 2 (PASC): Pathogenesis and Treatment" conference recently took place in Santa Fe, New Mexico at the El Dorado Hotel....
“Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany
"Your Blood is Black" “Your blood is black”, said the nurse. “And thick, very thick. We see this with all our Long Covid and ME patients, their blood is very dark and thick. It is not like this with our other patients who have apheresis.” I am now 45 minutes into my...
StudyME – The Open Medicine Foundation’s Project to Accelerate ME/CFS, FM and Long COVID Research
Things are happening! The chronic fatigue syndrome (ME/CFS) and post-infectious field in general is moving forward more quickly in more different ways than it ever has in the past. We can thank some far-sighted organizations for that. The Solve ME Initiative's...
Their Lives Were Interrupted by ME/CFS, Fibromyalgia or Long COVID: Pt I – Mima’s Story
Thanks to the 31 people who have posted their stories on Health Rising's Lives Interrupted project! The Lives Interrupted project seeks to, in dramatic fashion, illustrate the impacts on finances, careers, relationships, and living situations that these illnesses can...
“Provocative” PET Study Finds Unexpectedly Wide Immune Activation in Long COVID
Could ME/CFS be next? There's nothing like a pandemic to open new doors on post-infectious diseases, and it's no surprise that the Henrich/Peluso team at the University of California at San Francisco would be the ones to do that. With their LIINC project, they have...
The Immensity of Long COVID, Another Win for Vaccines and…Is RECOVER Up to the Task?
Eric Topol Decorated researcher, fierce critic, and innovator Eric Topol is not one to hide his light under a bushel. He speaks his mind. Whether he's right or wrong, with the kind of bona fides Topol brings to the game (he founded the Scripps Research Translational...
Enhancing the Endocannabinoid System in ME/CFS, Fibromyalgia and Long COVID: the Beta-Caryophyllene Option
A Non-Cannabis "Cannabis" Product Health Rising usually doesn't review products, but this line of products hit a sweet spot for four reasons. It was produced by Lee Know, a naturopath who was way ahead of his time when back in 2018 he wrote "Mitochondria and the...
A Potential Blood Test for Chronic Fatigue Syndrome (ME/CFS)?
"Our Raman spectroscopic approach has great potential as a diagnostic technique for diseases like ME/CFS" the authors A blood test - it's like the holy grail for chronic fatigue syndrome (ME/CFS). Not only would it legitimize the disease, and make it easier to...
Connections, Connections – Fibromyalgia, ME/CFS, Photophobia and MIGRAINE!
It's amazing sometimes what you see if you look. A blog on the causes and possible treatments for the very troubling photophobia, or light sensitivity, that some experience turned into a deep dive into migraine and its similarities to diseases like chronic fatigue...
StudyME
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