Winning the Lottery: “Novel” Treatments Return Severely Ill POTS Patient to Near Health
“The dramatic response to therapy in this patient is remarkable and could help others who suffer from POTS and MCAS.” The authors This, the fourth and last of a series of blogs featuring IVIG, and in this case other treatments, was sparked by attending the 2018...
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A Wing, A Prayer and Vicky Whittemore: The NIH and Chronic Fatigue Syndrome in 2018
“I think some people are angry for good reason. This disease hasn't gotten enough attention." Vicky Whittemore My partner and I made our way to Vicky Whittemore's office in a building off the NIH campus. Security was tight as always. We signed in and were escorted up...
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The Case for IVIG Treatment in Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia, Small Fiber Neuropathy, and POTS : IVIG#3
“The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG...
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Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)
An important voice has been silenced Dr. Lucinda Bateman Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC - a...
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The Man and the Map: Dan Moricoli on His Continuing Recovery and His Big ME/CFS/FM Map
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
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Autoimmune Model Proposes Chronic Fatigue Syndrome (ME/CFS) Begins in the Gut
A recent European paper proposes that chronic fatigue syndrome (ME/CFS) starts with your genes and your leaky gut but not the leaky gut you necessarily associate with the disease; the leaky gut you had before, perhaps long before, you got sick.. The authors also...
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ME/CFS and FM Experts Q & A
Edward Philip Daboub
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Dear Abby
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Disability
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