“Neither Dying, nor Recovering”: Learning from ICUs to Solve ME/CFS and Fibromyalgia – A Synopsis
From Dominic I believe observations made in Intensive Care Units can further understanding of ME/CFS. Indeed, following a severe injury or infection some ICU patients fail to begin recovery for unknown reasons. This condition, termed “chronic” or...
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AMMES: Helping Those Most In Need
The AMMES (American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society) fundraiser just seems different. Many great opportunities to give exist in the ME/CFS universe .AMMES is the only one that's dedicated, though, to helping people with ME/CFS who are...
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Dr. Klimas Talks on Sleep, Orthostatic Intolerance, Supplements, Exercise and Cognition in ME/CFS
ME/CFS Treatment Options Pt. 1 with Dr. Nancy Klimas - by Dan Moricoli How nice it is to have a professional cameraman committed to helping out ME/CFS in southern Florida. Dan Moricoli, a recovered person with ME/CFS, and the creator of the ME/CFS Community and CFS...
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The $170 Million NIH Exercise Study – and What it Could Do for ME/CFS
“It’ll be a tremendously enormous data set” NIH official It's rough reading about just how good exercise is for you - particularly for those of us who loved to exercise pre-ME/CFS. Exercise in most people improves the working of just about every system in the body....
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Ending the Somatization Myth in ME/CFS (or “Who’s the Deluded One Now”?)
When physicians see patients with medically unexplained fatigue, they often infer that this illness is due to an underlying psychiatric problem. The Authors Ronald Reagan said to Gorbachev, "Take down that wall!" and it did ultimately fall. The ME/CFS version of that...
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Are You a Clumper or Slider? The ESR ME/CFS and Fibromyalgia Poll
It's the simplest of medical tests. The erythrocyte sedimentation rate (ESR or SED rate) test simply measures the rate at which the red blood cells in whole blood descend in a test tube over a period of one hour. This non-specific measure of inflammation works...
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Thinking Bigger and Bigger: Solve ME’s Research Director Sadie Whittaker Talks On Moving Forward on ME/CFS
(This blog was compiled from several interviews conducted over the past year or so.) Sadie Whittaker, Solve ME's research director, got her PhD in molecular biology at the Univ. of Birmingham in the UK. After I quailed at how difficult that must have been - organic...
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Benjamin Natelson Wants You – To Take a Nap! (And Help Him Understand if ME/CFS and FM are Different)
A critical question at this juncture is to answer the question of whether CFS and fibromyalgia are the same or different illnesses. Benjamin Natelson You want subsets? Benjamin Natelson wants to open up a big one. The longtime chronic fatigue syndrome (ME/CFS) and...
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Getting at the Hurt in Chronic Pain
Pain - A Surprisingly Complex Experience Pain seems pretty elementary - it hurts! When it really hurts, you want to throw yourself out of your skin. It's actually not so simple. Pain is often described as a complex, "biopsychosocial phenomenon". The International...
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