HR 7057 – Historic Effort to Increase Funding for ME/CFS Gains Steam
H.R. 7057 - The Understanding COVID-19 Subsets and ME/CFS Act is back. There's a reason this is taking so long. It's the same reason that it's taken 4 years of work to get to this point. This is not just an attempt to get more money for ME/CFS: it's an attempt to...
Oral Rehydration Solution More Effective than Saline IV at Improving Orthostatic Intolerance
At the 2020 IACFS/ME Zoom Conference, Marvin Medow spoke on a recent study, "The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome". The study produced an unusual finding for this field - a potentially relatively...
Long-Term Saline Use Improves Cardiovascular Functioning in ME/CFS: A Workwell Case Report
The exercise physiologists at the Workwell Foundation are pretty darn good at providing thought provoking case reports. A couple of years ago, a Workwell case report indicated that a very ill ME/CFS patient was able, using Workwell's heart rate-based exercise program,...
Tying together Fear and Pain: the Parabrachial Nucleus of the Brainstem and Fibromyalgia
The Brainstem The brainstem - a small area at the base of the brain that contacts the spinal cord - has become of ever more interest in chronic fatigue syndrome (ME/CFS). Barnden's studies suggest brainstem involvement is present. VanElzakker believes brain scans...
The Brain Fog in Chronic Fatigue Syndrome (ME/CFS) Plus Even Mini Tilt Table Tests Wrack the Severely Ill
The two Dutch researchers, C. Linda van Campen and Frans Visser, and Peter Rowe from the U.S., have been on a tear recently. The Van Campen/Visser team (mostly with Peter Rowe) have published 6 ME/CFS studies thus far in 2020, one in 2019 and three in 2018. This is...
The Online Fibromyalgia Summit is Coming Soon
The Fibromyalgia Online Summit is occurring from Sept 28th to Oct 4th. These summits typically involve functional medicine and alternative health approaches to disease. In the online summits, the presentations are free to watch each day for everyone who registers. If...
Low Brain Blood Flows and Orthostatic Intolerance Ubiquitous in Chronic Fatigue Syndrome (ME/CFS)
Every once in a while a study comes along for which terms like "seminal" or "groundbreaking" seems appropriate. The 2020 Van Campen/Rowe/Visser study, "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or...
NASA Lean Test: An Easy Way to Diagnose Orthostatic Intolerance in ME/CFS, Fibromyalgia and POTS
We recommend that all ME/CFS and Fibromyalgia patients have a NASA 10-minute Lean Test to assess for orthostatic intolerance. Batetman Horne Center The saga of the effort to introduce and validate the NASA Lean Test (NLT) for ME/CFS just seems so right in so many...
Reflections on the MEAction Blog, An Apology – and a Promise
The #MEAction post (retitled after I calmed down to "#MEAction’s Support Needed On Bill to Increase NIH Funding"), has stirred up a lot. Boy, did it stir up a lot. It was understandable; the post was, after all, composed in quite a state of heat. I considered H.R....
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