“The OI Guy”: Peter Rowe MD on “Living Well with Orthostatic Intolerance” in ME/CFS, POTS and Long COVID: A Book Review and Talk
Geoff's Narrations The GIST The Blog This blog contains a review of Dr. Peter Rowe's new book, "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment", and a talk with Dr. Rowe. Dr. Rowe is the first person to publish a book on diagnosing and...
The “Elephant in the Room” Awakens: The Severely Ill with ME/CFS After Maeve’s Tragic Death
Check out Geoff's Narrations The GIST The Blog Ten years ago Dr. Peterson called the severely ill the "elephant in the room" that everyone had danced around for years. The elephant in the room got very visible recently. A recent coroner's report and inquest...
RECOVERING The RECOVER Initiative? TLC Conference Promises a New Path Forward for Long COVID
Geoff's Narrations The GIST The Blog Money, Money, Money Why has Health Rising spent so much time on the RECOVER Initiative for long COVID? It's simple - money. Let's not even think about the $1.15 billion Congress gave RECOVER over 4 years ago. That's largely gone....
A Post-Infectious Disease “Moment”: Common Pathogens are as Bad as COVID-19 in Creating ME/CFS
Geoff's Narration The Blog We've had chronic fatigue syndrome (ME/CFS) moments and long-COVID moments, and now we have our first post-infectious disease moment. "Moments" indicate that something significant has happened, suggesting that better times are ahead. In this...
Changing the World: the Fight for the Long COVID Moonshot Bill Begins
Geoff's Narration The Blog The time is now. Never did I dream that we'd have an opportunity like this. I still find the fact that it exists incredible. The fight for the $1 billion/year (yes, that's billion with a "B") "10-year Long COVID Moonshot Bill" is...
NIH Smacks the ME/CFS Research Centers: Plus a Warning for Long COVID – and an Opportunity for Both
ME/CFS was looking pretty darn good a couple of months ago. Led by Vicky Whittemore and Joesph Breen from the NIH, and Lucinda Bateman and Maureen Hanson, ME/CFS experts spent hundreds, if not thousands, of hours over the past year painstakingly preparing an...
Of Firehoses and Hope: An ME/CFS Advocate’s View of Ron Davis’s 2024 Working Group Meeting
Geoff's Narration The Blog Have you ever tried to drink out of a firehose? Me neither. Until last week. That's when I attended Ron Davis's annual Working Group meeting. That's where a roaring firehose of ME/CFS (myalgic encephalomyelitis/chronic fatigue...
A Long COVID / ME/CFS Moment Featuring NIH Director Monica Bertagnolli
Geoff's Narrations The GIST The Blog An ME/CFS or long-COVID moment is an indication that something in the force has shifted - that these diseases are making headway in ways they have not before. As we go along in our day-to-day lives, it's easy to...
The Central Nervous System Sensory Disorders: Dr. Clauw on Fibromyalgia, ME/CFS and Long COVID
Geoff's Narrations The GIST The Blog (Please note that I have added parts to this blog that were not covered in our talk.) It was great to get an opportunity to talk to Daniel Clauw M.D. who, with his hundreds of publications, was a key figure in helping drag the...
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