Finding Answers for Chronic Fatigue Syndrome and Fibromyalgia | Health Rising

David Tuller On Exposing the Bad Science Behind the Biopsychosocial Effort to Define ME/CFS

David Tuller On Exposing the Bad Science Behind the Biopsychosocial Effort to Define ME/CFS

by Cort Johnson | Apr 17, 2019 | 33 Comments

"...many of these people spout nonsense and then freak out when confronted with facts or details about the research that they can’t explain away." David Tuller David Tuller is a unique figure in the ME/CFS universe. A reporter and editor for the San Francisco...

The NIH ME/CFS Conference II: Lipkin’s Possibilities, Prusty’s Big Idea, Oh’s Search and Ron Davis on ALWAYS Moving Forward

The NIH ME/CFS Conference II: Lipkin’s Possibilities, Prusty’s Big Idea, Oh’s Search and Ron Davis on ALWAYS Moving Forward

by Cort Johnson | Apr 15, 2019 | 37 Comments

Day two of the Conference - not all of which is covered here, started off with a physicians' panel, then NIH Director Francis Collins showed up (covered later) just before the Intramural study presented some results, then it was onto Ian Lipkin, Dr. Oh, Bhupesh Prusty...

Accelerating ME/CFS? The NIH Conference Day I: Exhausted Systems, Inflammation and Weirdness

Accelerating ME/CFS? The NIH Conference Day I: Exhausted Systems, Inflammation and Weirdness

by Cort Johnson | Apr 10, 2019 | 77 Comments

A Critical Look at the NIH's Accelerating Research Conference This chronic fatigue syndrome (ME/CFS) conference was different. Besides the normal goal of bringing researchers together to share their latest results, it had an ulterior motive - getting NIH researchers...

East African Disease Informs Nath’s Search for the Cause of ME/CFS

East African Disease Informs Nath’s Search for the Cause of ME/CFS

by Cort Johnson | Apr 2, 2019 | 4 Comments

The fact that ME/CFS is a mystery doesn't daunt the leader of the NIH's big intramural study on ME/CFS at all. Just a couple of years ago Avindra Nath and his compatriots cracked a mysterious neurodegenerative disease in East Africa that researchers had reached a dead...

The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome

The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome

by Cort Johnson | Mar 30, 2019 | 17 Comments

The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever - Emily Taylor. Angst and...

Medscape’s Chronic Fatigue Syndrome (ME/CFS) Program Reaches Deep into the Medical Community

Medscape’s Chronic Fatigue Syndrome (ME/CFS) Program Reaches Deep into the Medical Community

by Cort Johnson | Mar 27, 2019 | 21 Comments

With its regular news updates, information on drugs and diseases, quizzes, conference overviews, and educational courses, Medscape, which just turned 20 years old, strives to be a kind of one-stop shop for medical professionals (and consumers). It appears to be...

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