“Long Haulers” to the Rescue? Barrage of Covid-19 Media Stories, Studies and Registries Spells Hope for ME/CFS
Media Barrage A veritable avalanche of stories - the C19Recovery Awareness website provides a link to approximately 50 articles since June 1st - have highlighted the problems that many people have had recovering from the coronavirus. With eight stories published in...
“A Demon on My Life” Gets It Right About ME/CFS: A Review
Thanks to "An ME Patient" for her review of "A Demon on My Life" “A Demon on my Life” is a play about a couple grappling with the effects of the wife’s ME. Written and directed by JB Bruno, it premiered on June 20th, with an encore performance on June 22nd. It...
DecodeME – U.K. Funds Largest ME/CFS Study Ever In Attempt to Get at Genetic Roots of the Illness
"Barely slept last night after we announced funding for a £3.2m DNA study partnership that I Chair. Seven years+ of advocacy and lobbying final paid off." Sonya Chowdhury, CEO of Action for ME - a leader in the effort When the Brits do it, sometimes they really do it....
A Blood Test for Low Energy Production? Intensive Exercise Study Provides New Insights
“I had thought, it’s only about nine minutes of exercise, how much is going to change? A lot, as it turns out.” Dr. Mike Snyder - senior author of the study How much could nine minutes of an exercise bout change in your body? Probably not that much, Dr. Snyder...
Could Neuroinflammation Be Triggering the Cortisol Issues in ME/CFS and Fibromyalgia?
"Therefore, in this study, we hypothesize that understanding cortisol patterns in both these syndromes may be a crucial factor in characterizing FMS and CFS." The authors More than any other substance, cortisol demonstrates how integral a role the stress response...
“A Demon on My Life”: Online Play about ME/CFS to Air Soon
A demon on one's life. What a ripe metaphor for chronic fatigue syndrome (ME/CFS). A demon - a kind of slippery, malevolent, unearthly being - difficult to get one's hands on. Difficult even to see... On one's life. Not around one's life but on it, pushing it, like...
From the Tahoe Outbreak to COVID-19 Dr. Peterson and Simmaron Take on the Coronavirus – and ME/CFS
As Dr. Peterson watched the coronavirus bear down on his community it was like deja vu. Thirty-six years ago Peterson was at the heart of one of the most infamous ME/CFS outbreaks in history - the 1984 Incline Village outbreak. Poor testing then had contributed to the...
The Great Split? Are Post-Infectious ME/CFS Patients Fundamentally Different?
The findings are tentative and need to be validated, but if they hold up they could signal a fundamental split between people who's chronic fatigue syndrome (ME/CFS) was triggered by an infection and those who came down with ME/CFS some other way. If your ME/CFS was...
Narrowed Small Blood Vessels Linked to Fatigue in ME/CFS
The Scheibenbogen Effect With the studies pouring out, it's getting hard to keep up with Carmen Scheibenbogen and friends in Germany. Scheibenbogen has co-authored no less than five papers on chronic fatigue syndrome (ME/CFS) in 2020. With Klaus Wirth coming on board,...
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