Fibromyalgia and Chronic Fatigue Syndrome: The Gap Widens
The similarities are striking: the symptoms, the shoddy research funding, the poor treatment from doctors, the gender imbalance and the stigma both still face. Both diseases still really exist on the fringes of medicine and medical research. Yet one disease is moving...
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Could an Alzheimer’s Drug Disaster End Up Helping ME/CFS and FM?
“The Holy Grail in this field has been to discover how to turn off neuroinflammation in microglia.” Tanzi It's been a bitter couple of years for big pharma and the Alzheimer's community. Just today, Eisai and Biogen announced they were abandoning Elenbecestat, the...
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New Anti-CGRP Migraine Drugs Disappear Both Migraine AND Fibromyalgia For Liz
It’s only been a month – but what a month it has been for Liz. Liz hasn’t had the easiest time of it health-wise. A longtime migraineur and fibromyalgia patient, Liz has had to endure a bucketload of mostly immune health problems that have probably stemmed from a...
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Did a Pivotal Moment For ME/CFS Just Happen?
The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community's side for decades. For decades advocates have thrown everything they could - heartbreaking stories, demonstrations, insults - at the NIH in vain. Even the...
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Neuroendocrine Dysfunctions in Prolonged Critical illness and Chronic Fatigue Syndrome ME/CFS and Fibromyalgia II: Treatment
In the second part of Dominic's series on the neuroendocrine dysfunctions found in prolonged critical illness states and ME/CFS/FM he explores treatment options, and asks if returning the neuroendocrine system normality will require new treatment combinations. ...
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Neuroendocrine Dysfunctions in Prolonged Critical Illness: Relevance for Chronic Fatigue Syndrome ME/CFS and Fibromyalgia Pt. I
Summary Prolonged or chronic critical illness – a term applied to patients that survive severe injury or infection, but fail to start recovering after a few days – is characterized by low levels of peripheral hormones (including T3, IGF-1, cortisol and testosterone)....
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The Big Ask: NIH Working Group Pushes for Strategic Approach To ME/CFS At Council Meeting – Sept 4th
Beginnings In 2016, Vicky Whittemore asserted before NANDSC (the National Advisory Council for the Institute for Neurological Disorders and Stroke (NINDS)) that a desperate need existed to bolster research for chronic fatigue syndrome (ME/CFS). (NANDSC Council is the...
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Dr. Klimas’s Big Win and What it Means for Chronic Fatigue Syndrome (ME/CFS)
I listened miserably to the sounds of silence broken by my occasional exclamations: "really?", "no kidding", "fascinating!". During my two long sessions with Dr. Klimas, the recorder app on my phone had decided to record only my questions - leaving silence for her...
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Cortene to Move Forward on New Drug for Chronic Fatigue Syndrome (ME/CFS)
In February of last year, Health Rising announced an unusual event was going to take place: a small drug company named Cortene was going to trial a new drug for chronic fatigue syndrome (ME/CFS). Cortene's trial was unique in a number of ways. For one, it involved...
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