The Suffering of One of Us is the Suffering of All – Pt IV: Didn’t Life Know WE Had So Many Plans?
In Part IV of Kyle McNease’s ME/CFS narrative of going from abundant health to being severely ill and then back to relative health, Kyle is rocked both physically and emotionally by an unexpected and tragic loss. Thanks to Ken Anbender, a former ME/CFS patient, for...
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Chronic Fatigue Syndrome (ME/CFS) Article Rocks Top Medical Journal
It took Tony Komaroff over thirty years to get this done but it may have been worth it. Komaroff, Harvard doctor, researcher and ME/CFS advocate, has been studying, writing about and advocating for ME/CFS research since at least 1987 when he was the senior author on...
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Gut Pain Connection Emerges in Fibromyalgia
Few studies ten years ago considered the gut and its flora in the context of chronic disease. Now microbiome studies are popping up in just about every disease. The "gut-brain" axis is a real thing. The bacteria in the gut appear to be able to affect brain functioning...
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The Suffering of One of Us is the Suffering of All: Part III – “Didn’t Life Know I Had Plans?”
In Part III of Kyle McNease’s narrative of going from abundant health to a severe case of ME/CFS, and then back to relative health, a loss hits Kyle hard, he ponders the fact that life didn't realize he had other plans, and he comes to a surprising realization that...
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The Epstein-Barr Virus – Could it be Causing Neuroinflammation in ME/CFS?
Forty years ago, the Epstein-Barr virus was the hot topic in ME/CFS. Nobody was talking about neuroinflammation back then. Now, though, the idea that neuroninflammation may be causing everything from increased pain sensitivity to fatigue to possibly even the movement...
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The Suffering of One is the Suffering of All: Pt II – Eros Lost, Absurdity and A Love Song
In Part II of Kyle McNease's narrative of going from abundant health to a severe case of ME/CFS, and then back to relative health, Kyle experiences abandonment, takes a surrealistic a trip to a psychiatrist, and reflects on the scars his illness has left on his loved...
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Epstein-Barr Virus May Be Turning On Pathogenic Genes in ME/CFS
If there was ever a "prodigal virus" in ME/CFS, it would be the Epstein-barr virus (EBV). Since the first EBV ME/CFS study in 1984, dozens of studies have examined the role the virus may play in this diseases, and tens of thousands have studied its possible effects in...
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The Suffering of One of Us is the Story of All of Us: Pt I – REELing
(Kyle's story of going from abundant health to a very severe case of ME/CFS, and then, when all looked bleakest, back to relative health, almost defies description. The length of his narrative, the elegance and directness of his writing, even the difficulty it...
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The ME/CFS and Fibromyalgia “What Would You Have Done Differently” Survey
when you get it right you pass it on… Gary Snyder When things go wrong, the "If only I had known! ", "If only I could have that back!" mantra shows up in spades. Of course, we all make mistakes - major mistakes - that we wish we could have avoided. False assumptions...
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