by Cort Johnson | May 26, 2019 | Cytomegalovirus, Gut, Homepage, Natural Killer Cells, T-cells
In decades of immune research, nobody has ever called attention to the specialized T-cells called MAIT cells in ME/CFS. Recently, though, two research efforts, working independently, have highlighted these unique cells – which form a bridge between the gut and... 
by Cort Johnson | May 23, 2019 | Coping, Finances, Homepage
Neglect is embedded in our history. It’s hard to have a conversation without someone mentioning the neglected funding, the doctors who don’t get it, the lack of treatments, the unheeding friends or family; i.e. the things we as a community don’t have... 
by Cort Johnson | May 21, 2019 | Brainstem, Craniocervical Instability, Homepage
I can hardly believe it myself. My ME is in remission. Jen Brea She ditched her wheelchair seven weeks ago. Her POTS disappeared in March. The sensitivities to sound, light, vibration and touch are gone. So is the muscle twitching, the air hunger, the restless legs,... 
by Cort Johnson | May 17, 2019 | Ampligen, Cortene, Dextromethorphan, Electromagnetic Radiation, Flexeril, Homepage, Ivabradine, Ketamine, Lyrica, Metformin, Mifepristone, Stimulants, Suramin, Tomnya, Treatment
Both fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) clearly need better treatments. The FDA-approved drugs for these diseases are too often ineffective, come with too many side effects (fibromyalgia) or just aren’t available at all (ME/CFS). Too many... 
by Cort Johnson | May 14, 2019 | Fibromyalgia, Homepage, Sleep
It’s been a tough couple of years for drug trials in fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS). The rapid approval of three drugs (Lyrica, Cymbalta, Savella) in the late 2000’s made FM seem like a good bet. Four years ago the future looked...
