by Cort Johnson | Sep 19, 2018 | Gut, Homepage, IVIG, Low Dose Naltrexone, Mast cell activation syndrome, POTS, Xifaxin
“The dramatic response to therapy in this patient is remarkable and could help others who suffer from POTS and MCAS.” The authors This, the fourth and last of a series of blogs featuring IVIG, and in this case other treatments, was sparked by attending the 2018... 
by Cort Johnson | Sep 17, 2018 | Advocacy, Homepage, NIH
“I think some people are angry for good reason. This disease hasn’t gotten enough attention.” Vicky Whittemore My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in... 
by Cort Johnson | Sep 13, 2018 | Autoimmune, Fibromyalgia, Homepage, IVIG, Klimas, Levine, POTS, Treatment
“The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG... 
by Cort Johnson | Sep 9, 2018 | Advocacy, Homepage
An important voice has been silenced Dr. Lucinda Bateman Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC –... 
by Cort Johnson | Sep 6, 2018 | Exercise, Homepage, Mind/body, Recovery stories
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
