In 2015, Dean Echenberg, MD, PhD, a former public health official and Director of Disease Control in San Francisco at the height of the HIV/AIDS epidemic, had a question. His own course of ME/CFS had been anything but smooth. Echenberg had experienced years of illness...
A Story With Hope “Just over a year ago, I could not leave my house without a wheelchair. I spent most of my day on a couch or a bed, lying or sitting down. I avoided light, sounds, gatherings.” Christine I attended the Accelerating Research on ME/CFS...
It’s easy to get wrapped up in the-day-to-dayness and forget to look at the big picture. Looking back over the year, however, I was amazed at how much has happened and how many new possibilities have opened up. It’s been a remarkable year –...
EpicGenetics – a biotech firm in Los Angeles – is attempting an FM trifecta: produce a blood and genomic test and provide a treatment. EpicGenetics is trying to make a big splash in fibromyalgia. A Los Angeles biotech firm, they focused on producing...
Studies suggest that a different form of intracranial hypertension may be common in chronic fatigue syndrome (ME/CFS), fibromyalgia and migraine. After digging around several times, the doctor was able to access my spinal fluid and I stopped squirming. Then Dr....
A recent Australian study suggested an already FDA approved drug can revive the not so killer natural killer cells found in ME/CFS in the lab. If that finding translates to humans we’ll have a breakthrough in the one verified immune hole in ME/CFS – one...
