It was a project birthed in hope. Pal Schaathun, a Norwegian filmmaker would document what he hoped might be the end of chronic fatigue syndrome (ME/CFS). That, unfortunately, turned out not to be but Schaathun ended up documenting – in strikingly beautiful...
I was a bit anxious as I waited for Dr. Pridgen to pick up. It had been a year and a half since we talked and I had heard nothing. Given Pridgen’s approach – using antivirals in a disease (fibromyalgia) that few connected with pathogens – his...
Last March, I trudged out to the van to install a solar panel. I’d been fighting a cold but this was something thing I dearly wanted to get done. In general, I felt a little activity had been helpful with colds. This time, it was different. The work took longer...
In 2015, Dean Echenberg, MD, PhD, a former public health official and Director of Disease Control in San Francisco at the height of the HIV/AIDS epidemic, had a question. His own course of ME/CFS had been anything but smooth. Echenberg had experienced years of illness...
A Story With Hope “Just over a year ago, I could not leave my house without a wheelchair. I spent most of my day on a couch or a bed, lying or sitting down. I avoided light, sounds, gatherings.” Christine I attended the Accelerating Research on ME/CFS...
It’s easy to get wrapped up in the-day-to-dayness and forget to look at the big picture. Looking back over the year, however, I was amazed at how much has happened and how many new possibilities have opened up. It’s been a remarkable year –...
