Two chronic fatigue syndrome (ME/CFS) experts; Dr. Kaufman – an internist, and Dr. Ruhoy – a neurologist – began a more or less weekly Patreon channel called Unraveled: Understanding Complex Illness in December of last year. The Patreon broadcast provides the rare...
In her last blog, Melissa reported that her symptoms were greatly improved by a spinal patch. She returns with a new blog on high intracranial pressure, and ME/CFS/FM and long COVID. This is a post on intracranial pressure and its effect on many illnesses and their...
(My apologies for those who got two email blasts. I’m not sure how that happened.) In this hour plus Q&A with Sheffield ME and Fibromyalgia Group I got to blab about hot topics in fibromyalgia research, hope for future treatments, how chronic fatigue...
(Jeff Wood’s remarkable recovery following spinal surgery to correct craniocervical instability (CCI) and tethered cord shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. In this piece Jeff – the former ME/CFS patient who started all...
A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the...
Studies suggest that a different form of intracranial hypertension may be common in chronic fatigue syndrome (ME/CFS), fibromyalgia and migraine. After digging around several times, the doctor was able to access my spinal fluid and get a sample and I was able to stop...