A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the...
Studies suggest that a different form of intracranial hypertension may be common in chronic fatigue syndrome (ME/CFS), fibromyalgia and migraine. After digging around several times, the doctor was able to access my spinal fluid and get a sample and I was able to stop...
The first large study examines spinal issues in chronic fatigue syndrome (ME/CFS). A couple of years ago, there was hardly any discussion of spinal issues in ME/CFS. It’s become clear, though, that spinal issues are present in some patients and can even, in some...
The Spinal Series This is part three of a series examining spinal issues which may mimic chronic fatigue syndrome (ME/CFS) and fibromyalgia. The first two in the series involved two very ill ME/CFS patients who have recovered or are recovering following surgery to...
I never would have guessed this was the solution to my ME/CFS. Jeff, on Phoenix Rising Jeff had a typical ME/CFS onset: he was a young, healthy and active individual before being felled by a viral infection and a high temperature. The infection left him with...
“Is it possible, then, that chronic fatigue syndrome represents an incomplete form of idiopathic intracranial hypertension (IIH)?” Higgins et al. “Your lumbar pressure is high” I remember Dr. Baraniuk commenting as a doctor started removing my...
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