“Your Blood is Black” “Your blood is black”, said the nurse. “And thick, very thick. We see this with all our Long Covid and ME patients, their blood is very dark and thick. It is not like this with our other patients who have apheresis.” I am now 45...
Another “ME/CFS moment” – a sign that things are looking up for ME/CFS and related diseases has occurred. It’s the emergence of the STAT earpiece and it just goes to show that we never know what things are being worked on right now that might...
(My apologies for those who got two email blasts. I’m not sure how that happened.) In this hour plus Q&A with Sheffield ME and Fibromyalgia Group I got to blab about hot topics in fibromyalgia research, hope for future treatments, how chronic fatigue...
Ivabradine appears to work quite well in POTS – but should we stop there? Ivabradine was approved for use in the European Union in 2005, but it’s pretty new to the scene in the U.S. It was FDA approved in only 2015. That means it doesn’t have much...
A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the...
At the 2020 IACFS/ME Zoom Conference, Marvin Medow spoke on a recent study, “The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome”. The study produced an unusual finding for this field – a...