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“Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

by Patrick Usher | Sep 25, 2023 | Apheresis, Blood Volume, Clotting, Homepage, Orthostatic intolerance, Treatment

“Your Blood is Black” “Your blood is black”, said the nurse. “And thick, very thick. We see this with all our Long Covid and ME patients, their blood is very dark and thick. It is not like this with our other patients who have apheresis.” I am now 45...

Post-Exertional Malaise Busters for ME/CFS, FM and now Long COVID – Take II

by Cort Johnson | Sep 5, 2022 | Anti-inflammatory, Antivirals, Blood Volume, CoQ10, Dextromethorphan, Diet, Energy Enhancers, Etanercept, Exercise, Herbs and Botanicals, Homepage, Hydrocortisone (Cortef), L-carntine/Acetylcarnitine, Low Dose Naltrexone, Mestinon, NAC, Pacing, Propanolol, Research, Treatment

This blog asks if it’s possible to reduce the PEM period by doing things other than resting. It’s a long blog – you may want to print it out using the print button on the bottom left of the blog. About 5 years ago, Health Rising did a post on...

IACFS/ME Conference 2021 Pt. III – the Exercise Studies: Long COVID Moves Closer to ME/CFS, Metabolomic Weirdness, Two Symptoms to Rule Them All?

by Cort Johnson | Oct 4, 2021 | Blood Volume, Exercise, Homepage, Metabolism

The overviews of the 2021 IACFS/ME Conference continue with a focus on exercise studies. “A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference “Emerging Options for Autoimmune ME/CFS”: Scheibenbogen at...

Hypothesis Predicts Major Failure Point in Chronic Fatigue Syndrome (ME/CFS)

by Cort Johnson | Jul 9, 2021 | Blood Volume, Cardiovascular, Energy Production, Homepage, Muscles, Research

After attempting to explain the cardiovascular issues in ME/CFS, Klaus Wirth and Carmen Scheibenbogen take on the energy and muscle issues. Warning – this is complex! Klaus Wirth and Carmen Scheibenbogen brought the chronic fatigue syndrome (ME/CFS) world...

Oral Rehydration Solution More Effective than Saline IV at Improving Orthostatic Intolerance

by Cort Johnson | Sep 15, 2020 | Blood Volume, Homepage, Orthostatic intolerance

At the 2020 IACFS/ME Zoom Conference, Marvin Medow spoke on a recent study, “The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome”. The study produced an unusual finding for this field – a...

Long-Term Saline Use Improves Cardiovascular Functioning in ME/CFS: A Workwell Case Report

by Cort Johnson | Sep 12, 2020 | Blood Volume, Exercise

The exercise physiologists at the Workwell Foundation are pretty darn good at providing thought provoking case reports. A couple of years ago, a Workwell case report indicated that a very ill ME/CFS patient was able, using Workwell’s heart rate-based exercise...