Ivabradine – Could a “Wonder Drug” For POTS Work in ME/CFS?
Ivabradine appears to work quite well in POTS – but should we stop there? Ivabradine was approved for use in the European Union in 2005, but it’s pretty new to the scene in the U.S. It was FDA approved in only 2015. That means it doesn’t have much...
When Dr. Peter Rowe Speaks – We Should Listen: Dr. Rowe on ME/CFS at the Dysautonomia International Zoom Conference
A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the...
Future Drugs for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)? A Clinical Trials Survey
Both fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) clearly need better treatments. The FDA-approved drugs for these diseases are too often ineffective, come with too many side effects (fibromyalgia) or just aren’t available at all (ME/CFS). Too many...
Death in Chronic Fatigue Syndrome (ME/CFS) – What has it Told Us? The Autopsy Files
It’s always hard to lose a loved one, but the deaths in ME/CFS seem particularly hard. They tend to be quite painful, they often take place in the midst of a non-supportive medical system, and they’re a complete mystery. With no seeming way out it’s...
Wired to the Gills: The Hyperadrenergic POTS Group – The Dysautonomia International Conference #V
Italo Biaggioni, a respected Vanderbilt researcher in the field, has co-authored 100’s of studies on dysautonomia. He was an impressive speaker, at ease and relaxed in front of the room. I felt like I was sitting in his living room. He noted that the...StudyME
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