The US ME/CFS Clinician Coalition Created in 2018 by a group of U.S. physicians, the US ME/CFS Clinician Coalition is dedicated to advancing best medical practices to medical providers on how to best diagnose and treat ME/CFS. Since 2018, the word has gotten out and...
Ivabradine appears to work quite well in POTS – but should we stop there? Ivabradine was approved for use in the European Union in 2005, but it’s pretty new to the scene in the U.S. It was FDA approved in only 2015. That means it doesn’t have much...
A riff on Dr. Peter Rowe’s presentation at the 2020 Dysautonomia International Conference (note that I expand on many of Rowe’s points; i.e. not all the words are his.) Lauren Stiles, the founder of Dysautonomia International, has long believed that the...
Both fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) clearly need better treatments. The FDA-approved drugs for these diseases are too often ineffective, come with too many side effects (fibromyalgia) or just aren’t available at all (ME/CFS). Too many...
It’s always hard to lose a loved one, but the deaths in ME/CFS seem particularly hard. They tend to be quite painful, they often take place in the midst of a non-supportive medical system, and they’re a complete mystery. With no seeming way out it’s...
Italo Biaggioni, a respected Vanderbilt researcher in the field, has co-authored 100’s of studies on dysautonomia. He was an impressive speaker, at ease and relaxed in front of the room. I felt like I was sitting in his living room. He noted that the...
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