This blog contains: the race between the vaccines and the variants wrap-ups of the 1st Coronavirus Vaccine and the Severely Ill Vaccine polls, ME/CFS/FM experts’ second take on whether or not to take the vaccination a Vaccine Improvements Poll. The Race Between...
We’re moving into a prime advocacy period. This is the second of a series of blogs on advocacy that are going to appear over the next month. The first focused on the big advocacy event of the year – the Solve ME/CFS Initiative’s Lobby Day. If...
Decisions. Decisions. Whether or not to get vaccinated is a difficult one for the many people in the chronic fatigue syndrome (ME/CFS) community, in particular, who have stayed away from any vaccines, sometimes for decades. With almost 1,700 people taking the...
A message I had never seen before had popped up on my Oura ring app. Both my heart rate and temperature were elevated and it suggested that I go to “rest mode”. Doing so would have the Oura drop my “activity goal” for the day and just have me...
The Long COVID Funding The 2020 COVID-19 Economic Relief bill had been months and months in the making, and while Emily Taylor, the lead advocate for the Solve ME/CFS Initiative (Solve M.E.), had publicly shared nothing, she was keeping a very close eye on the long...
Paul Garner’s recovery story from long COVID has met with almost universal dismay and anger from the chronic fatigue syndrome (ME/CFS) community. Garner, after all, was something of a champion for long COVID and ME/CFS. An infectious diseases specialist who had...
