by Cort Johnson | Dec 12, 2018 | Allodynia, Autoimmune, Brain, Gut, Herpes Simplex Virus, Homepage, Ivabradine, IVIG, Migraine, Prefrontal Cortex
It’s always hard to lose a loved one, but the deaths in ME/CFS seem particularly hard. They tend to be quite painful, they often take place in the midst of a non-supportive medical system, and they’re a complete mystery. With no seeming way out it’s... 
by Cort Johnson | Nov 3, 2018 | Autoimmune, Drugs, Energy Production, Genetics, Homepage, Inflammation, Mast cell activation syndrome
The Solve ME/CFS Initiative’s Ramsay Awards are small grants (@$50K – only in the medical field is 50K small) but potentially mighty grants. They are designed to give researchers the funding to produce pilot data needed to get really big grants – the... 
by Cort Johnson | Oct 3, 2018 | Autoimmune, Energy Production, Homepage, Human Herpes Virus Six (HHV-6), Immune, Neuroinflammation
As we know, grant applications in chronic fatigue syndrome (ME/CFS) are hard to come by. Freedom of Information Requests indicate that the NIH received the lowest number of ME/CFS grant applications in memory last year – just 15. Since the NIH spends MUCH more... 
by Cort Johnson | Sep 13, 2018 | Autoimmune, Fibromyalgia, Homepage, IVIG, Klimas, Levine, POTS, Treatment
“The bottom line is that we should rethink this whole area and encourage proper clinical trials.” Dr. Nancy Klimas This article is the last of a three-part series on IVIG which came out of my attending the 2018 Dysautonomia Conference in Nashville, Tennessee. An IVIG... 
by Cort Johnson | Sep 4, 2018 | Autoimmune, Energy Production, Gut, Oxidative Stress
A recent European paper proposes that chronic fatigue syndrome (ME/CFS) starts with your genes and your leaky gut but not the leaky gut you necessarily associate with the disease; the leaky gut you had before, perhaps long before, you got sick.. The authors also... 
by Cort Johnson | Aug 15, 2018 | Antiphospholipid Antibody Syndrome, Antiphospholipid Antibody Syndrome, Autoimmune, Autonomic Nervous System, Conference Reports, Heparin, Homepage, POTS
This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. As if we needed another syndrome. Chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS),...
