In 2015, Dean Echenberg, MD, PhD, a former public health official and Director of Disease Control in San Francisco at the height of the HIV/AIDS epidemic, had a question. His own course of ME/CFS had been anything but smooth. Echenberg had experienced years of illness...
A Story With Hope “Just over a year ago, I could not leave my house without a wheelchair. I spent most of my day on a couch or a bed, lying or sitting down. I avoided light, sounds, gatherings.” Christine I attended the Accelerating Research on ME/CFS...
The first five parts of Kyle McNease’s ME/CFS story (The Suffering of One is the Suffering of All) related his journey from an athletic Oxford student to a biological basket case. When we left him, Kyle was near the end of his rope: emaciated, wracked by...
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
“These are really….immunological disorders” Dr. Carl-Gerhard Gottfries (psychiatrist) It’s a fascinating story. It involves a psychiatrist who over fifty years ago cured his chronic fatigue syndrome using an immune booster. When he was barred from...
The ME/CFS and FM recovery stories that have been popping up more and more lately are triggering hope – and questions. In this blog Dan Neuffer asks some fundamental questions regarding “recovery”. What constitutes a true recovery? Do people with...
