Basic Stuff

  • Name: Diane
  • Country: United States
  • State: Massachusetts
  • City: Waltham
  • Gender: Female
  • Age: 63
  • Education: Four Year Degree
  • Primary Illness: Chronic fatigue syndrome/myalgic encephalomyelitis (ME/CFS)
  • Diagnosis:
    • Chronic Fatigue Syndrome (ME/CFS)
    • Postural Orthostatic Tachcycardia Syndrome (POTS)
    • Neurally mediated hypotension
    • Migraine
    • Small Fiber Neuropathy; Myasthenia Gravis; Hashimoto’s
  • Year Illness Began: 1991

Functioning Interrupted

Former Level of Functionality: 100
(No symptoms at rest; no symptoms with exercise; normal overall activity level; able to work full-time without difficulty.)
Current Level of Functionality: 20
(Moderate to severe symptoms at rest. Unable to perform strenuous activity; overall activity 30%-50% of expected. Unable to leave house except rarely; confined to bed most of day; unable to concentrate for more than 1 hour a day.)

Work Interrupted

  • Former Occupation: Software Project Manager/Internationalization Specialist
  • Job Responsibilities at Former Occupation:

    Manage the development schedules for a large software product team. Troubleshooting issues with different teams and departments. Coordinating with overseas offices and teams responsible for developing, testing, documenting and marketing Lotus desktop products.

  • Years of Work Lost: 26
  • Current Work Status: On disability

Income Interrupted

  • Yearly Income Before Becoming Ill:


  • Yearly Income From Disability:


  • Minimum Current Annual Income Loss:


  • Total Projected Economic Losses For Years Not Worked:


Other Interruptions

Certified Disabled: Yes

  • My parents or other family members have provided financial support
  • I left my job or retired early

Most Impactful Loss

My fierce independence and ability to take care of myself & my loved ones — physically & financially, and losing my ability to fully engage with friends and family because I can’t participate in almost all things. Also losing my international career that I loved and was good at.

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