Basic Stuff

• Name: Cort
• Country: United States
• State: Nevada
• City: Henderson
• Gender: Male
• Age: 63
• Education: Masters Degree
• Primary Illness: Chronic fatigue syndrome/myalgic encephalomyelitis (ME/CFS)
• Diagnosis:
  • Chronic Fatigue Syndrome (ME/CFS)
  • Fibromyalgia (FM)
  • Irritable bowel syndrome
  • Environmental Illness (EI)
• Year Illness Began: 1980
• Pursuing a bachelor’s degree in the United States when illness began: Yes
• Year of college when illness began:

Functioning Interrupted

Most Impactful Loss

Honestly, my ability to exercise and the healthy feeling I got from it is the thing I miss the most. I used to love to exercise - go on long walks, run, swim, bike, and backpack. Exercise was an integral part of my life and I loved how my body felt doing it. I hardly remember the feelings of wellness and strength that I had.

My Story

Long ago and pretty far away I was an athletic student running through the redwood forests on the Univ. of California at Santa Cruz. I had found my calling - environmental studies - and was thoroughly engrossed in nature.

Looking back - what potential that time had! What a unique set of people were there! I now wonder what happened with them.

I was doing tremendously in my studies - but then my thighs began to ache, I became more and more fatigued, I felt like the blood was pooling in my feet and I had to lie down. Lying down my heart would pound, pound, pound, and I wondered how much it could take. Forty years later I can still remember it vividly.

I dropped out of school around 1980. I was emaciated and in pain. Nobody - not the doctors, not the therapists - nobody had a clue. My tests were all normal. A stint in a temporary mental facility had no effect. I mostly lay in bed.

Then I did something called the EST training that my mother had done. It had a remarkable effect that I still marvel at today. It lit a fire - got me going again. I was still unable to exercise, still often exhausted, still not myself, still feeling like I was just hanging on, but I was back on the move. I shudder to think what would have happened if not for that program.

I worked mostly part-time at some crummy jobs - never anything with any real responsibility and eventually managed to get a Bachelor's Degree in Philosophy and finally, in what probably broke a record for duration, a Master's Degree in Environmental Sciences. A severe case of chemical sensitivities hit which left me sleeping outside or in my car - a situation, which while considerably better, persists today.

School I could do. Work was another issue but I ended up lucking out. I lucked out when I created Phoenix Rising in the mid-2000s and then Health Rising in 2012. I couldn't do much physical work but I could still read and write and so - thoroughly dissatisfied with the content on ME/CFS/FM on the web - I read and wrote, and read and wrote, and that's basically what I've been doing for the past 17 years.

Besides the opportunity to be immersed in a subject that's had such an impact on my life Phoenix Rising and Health Rising provided some income - a little at first but more later on. I was fully or partially supported by my father for many years. By the time he passed away a couple of years ago, though, I was able to finally support myself.

Relationships were always problematic given my physical limitations but I finally did meet someone - who also has ME/CFS - and we've been together for almost 7 years.

Over forty years later, I'm still kind of amazed that it happened - and that it never got resolved! It's a head-shaker for sure.