Basic Stuff

  • Name: Kitty
  • Country: United States
  • State: Rhode Island
  • City: East Greenwich
  • Gender: Female
  • Age: 64
  • Education: Masters Degree
  • Primary Illness: Other
  • Diagnosis:
    • Chronic Fatigue Syndrome (ME/CFS)
    • Fibromyalgia (FM)
    • Irritable bowel syndrome
    • Epstein Barr
  • Year Illness Began: 2021

Functioning Interrupted

Former Level of Functionality: 100
(No symptoms at rest; no symptoms with exercise; normal overall activity level; able to work full-time without difficulty.)
Current Level of Functionality: 70
(Mild symptoms at rest; some daily activity limitation clearly noted. Overall functioning close to 90% of expected except for activities requiring exertion. Able to work full-time with difficulty.)

Work Interrupted

  • Former Occupation: Women’s Boutique/Therapist
  • Job Responsibilities at Former Occupation:

    Running a women’s boutique store, which includes a lot of lifting being on your feet all day, remembering orders, and a lot of interaction with people which is also what I do in therapy practice but it’s a little easier because I don’t stand and I am dealing with one person at a time

  • Current Occupation: Business owner/therapist
  • Current Job Responsibilities:

    Same as above

  • Years of Work Lost: 1
  • Current Work Status: Still working

Income Interrupted

  • Yearly Income Before Becoming Ill:


  • Current Yearly Income:


  • Minimum Current Annual Income Loss:


  • Total Projected Economic Losses For Years Not Worked:


Other Interruptions

Certified Disabled: No

  • I reduced my work hours
  • I believe this illness contributed significantly to a divorce or loss of an important relationship

Most Impactful Loss

Well, maybe the relationship wasn’t worth investing in, but I did lose a friendship or two because I was not able to be present for them.

My Story

So I went from taking kickboxing, and working to one day, noticing I could barely do a push-up. This happened not long after receiving the Covid booster in January 2021. Of course I pass it off for many other reasons, until I finally have my physical that following August, and by that time my symptoms had exacerbated it. After many blood test it was discovered that my Epstein-Barr level was in the 600s and I was told there was nothing that could be done to treat it so I went to a functional medicine doctor for a while, and received IV cocktail infusions, which were really helpful, but they don’t last, and I ran out of money to be able to afford it and at this time I was paying people to run my store, which was costing me even more money. Additionally, I started going regularly to sauna(which really helps) spending all this money put me into a downward spiral financially, which I am still trying to crawl out of.

I have been able to function better even though my numbers have not improved probably with the help of all the supplements I am taking , trying to watch what I eat, in addition to infrared light therapy.
Well, this is somewhat limited my ability to get things done the way I used to. I am trying to learn how to live within the confines of chronic pain and brain fog.
I regret, listening to my wiser self about vaccinations and me, but I was trying to do the right thing at the time and being a nurse I wanted to believe. I would never been able to work in my full time nursing job feeling the way I do now . I had left just prior to getting the booster in May of 2020 because of stress having worked through Covid and being short staffed the entire time I was already physically and mentally challenged.
I appreciate all who are trying to help people with this and working as a nurse. I heard many opinions about fibromyalgia/CFS etc. and know how these patients are treated.

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