I've been trying to add my experiences with alternative treatments but keep hitting the send too soon. I found the poll on Fibromyalgia Does it Get Better, that I took and printed out, now I've lost both my printout & where I found it on this web site.
Yesterday (March 16), a journal article proposed a new serum biomarker using (a) Activin B, (b) follistatin, and (c) the ratio of the first two. This is NOT the recent Griffith U. team biomarker. Instead, this is by a different university in Australia. Here is a link to the full article published yesterday.
Need a Chicago Doctor (again) Any suggestions or referrals?
Been on Effexor for almost a year. Too strong at full dose of 2/day at 37.5 mg. Then 1/day. Then 1/2 a day. Anyone have luck with this?
Elise, Wellbutrin worked well for me for 5 years. I started at lowest dose, worked up slowly. Did not sleep much for a week, but then sleep, GI function, attitude, so much improved. Effexor made me tired. I am very wary of the generic substitutes, but can't really afford brand.
hey cort, i was looking into getting ampligen out of canada, where i live, (BC) , but the special access drug program has stated that it is not available, then told me it had not been accessed for ten years, so i've asked to confirm with me that it is not available. apparently they used to do it but they stopped. thoughts? i emailed hemispherx
I really don't know about Canada. I think the program has been dwindling in the US actually. I think emailing was a good idea.
I was reading your post sorry u r not well
Sending warm thoughts and prayers your way.
My son has major sensitivities to everything and has a hard time taking anything including food, meds etc. He has been tested with his ferritin at 17, amonia 61, typtase 1, immunoglobulin e 214. Any thoughts on this? thank you!
check out Iron Man article for ferritin. We should get a study out showing that ferritin makes a big difference in POTS. Dr. Cheney found that gabapentin helped with chemical sensitivities and I am finding that B3 calms my system down and helps was well. I would think that anything that could calm his system down might help.
I am going thru the same thing and it has been terrible. I'm a little anemic and have a sinus problem but the exhaustion is unbearable. You are not alone.
Have you tried iron infusions? Sometimes that's the only thing that will really get the iron levels up enough.
All days are difficult, especially mornings, but the past week I've been in the throes of a "flare". The pain & malaise are awful.
'If 'CFS' is autoimmune malaise then Vitamin D3 ought to cure it.' *
Chances are very, very high
Good morning to you all
Good morning to you Winged Helix - a day later
Hanging on to hope
hi mate. this is the place to be now hey? just thought id see how you were getting on
Hi mate, its the place to be if you dont want your posts watered down or deleted by mods trying to protect their own agenda and beliefs.
what we're not doing that yet? What;s the matter with us?
Diagnosed with Me/cfs and fibroymalgia 8 yes ago.
I found your resource 'Nutritional Genomics and My Complete Recovery' when researching MAO-A. I’ve read your posts on the forum and am interested in your approach - you seem to seek root causes rather than trying to 'fine tune' everything (like Yasko). I have FMN on order. Do you have any information that might be helpful to me? (I'm male, 57, lifelong depression, MAO rs6323 and rs909525, 23andme member)
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