Nothing short of Brilliant.I do understand the stance here, however I feel it is reflective of the profound stimatization of "mental" illness in our culture: including the medical community.
The fact is that all "mental" disorders are in fact neurological and physiological. Each might have multiple causes, though none are the result of "willpower," or some sort of moral failure. The artificial dichotomy, between obsolete notions of "psychiatric" and "physiological" conditions, is ruling this discussion....I know why, and I understand its political implications, but it is a false dichotomy none-the-less.
My own story is an anecdotal case in point. To keep it short: I am depressed, I have severe dysautonomia, confirmed by small fiber biopsies and cardiac testing, and I am a former athlete who is now deconditioned. I feel all these symptoms might be traced to medication that proved to be neurotoxic, and all have made me disabled and bedbound for a year now. (I have not yet been offered a diagnosis of ME...but I'm here because I feel I could.)
I also have a history of trauma (which let's face it, is far more common among those with ME and fibromyalgia, than the general population). A history of trauma is known to have strong physiological repercussions. All of these "bio-behavioral" factors might be coalescing in my case, causing a profound physiological response. (As noted, I do consider depression to be physiological). I also stress this is one case....it does not speak to others' stories, although I'm sure its complexity is shared.
Just this week I had my neurologist do a blood draw to analyze whether specific inflammatory cytokines might be causing my depression, small fiber neuropathy, and my "sickness response." This has shown to be the case in trials...and it took much research on my part to get my neurologist to buy into this hypothesis.
So, I just would like those who shudder at the idea that ME might have what are commonly called "psychiatric" (among many) causes to think about what stereotypes might underlie their reactions. My personal view is ME is an umbrella term, much like "dysautonomia," that now covers a myriad of causes and consequences: including those now unfortunately (mis)labeled as psychiatric in origin.
To understand, and more importantly, successfully treat ME, might take a more open look at what factors and conditions comprise it. My great wish is to remove stigma and bias from the discussion and investigative approach of researchers and sufferers alike.
I'm not after an answer that sits well with me. I'm after an answer. Period. I don't care whether it's to do with gut bacteria, neurology or psychiatry.
You can't find the truth by entering a discovery process with emotionally driven biases and predispositions.
All avenues should be fully and equally explored or the whole process is pointless.
I'm tired of people deciding what the answer should be based on what agrees with them. I.E It can't be Pace, or it can't be psychological. But for some reason if it involves taking medication then it's a perfectly good solution. I can understand why normal people dismiss CFS as psychological when sufferers try so hard to shutdown anyone that mentions ownership or hard work as a solution. (Not saying that is the solution, or that it's possible, just to be open minded and not be emotional).