Your old primary care doctor had seen it before - isn't that something......
That was back when hometown doctors knew their patients and actually looked at and listened to those patients rather than tests and computer screens.
![Wink ;) ;)](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
I’ll bet most of those old-time doctors were very familiar with these illnesses.
1988 - Wicked “flu” with 106+ fever and encephalitis:
*Treated supportively only, with no antiviral therapy.
*After this I required
much more sleep, without which I would get what I now know to be PEM
*Otherwise functioned at a very high level and did not report to doctors.
2007 -
High life demands and repeated URI’s; classic ME/CFS symptoms dramatically increase:
*Saw
many doctors (GP, Neurologist, Gastroenterologist, Endocrinologist, Psychiatrist, Gynocologist, Otologist, Pulmonologist, Geneticist, Nephrologist, etc)
*Despite history of very high function, was repeatedly told nothing was wrong; or, if an abnormality was found I was labeled “uncooperative” or abnormalities were pigeon-holed and ignored.
*Repeatedly prescribed antidepressants and anxiety meds (which I refused).
*Given hormone creams and told to “smear these on your boobs until you feel better, and stop coming back here.”
*Kept pushing hard at work and exercise, as recommended by doctors
*Remained moderate with increasing frequency and duration of down spells until …..
2012 - Total collapse:
*Finally diagnosed with ME/CFS, but had to fly across country to get diagnosis.
*The physiological stress of flying (due to what I now know to be dysautonomia) and IV glutathione caused me to crash to severe, from which I’ve yet to recover.
*Wasted $ thousands on said "CFS specialist’s” private label supplements.
2014 -
Accepted at INIM.
*Began treatment with ME appropriate drugs - Inosine, Famvir, dysautonomia meds, sleep meds, etc.
*Remain severe - housebound / bed bound