Hello and many greetings from Germany.
I've been reading here on the homepage for some time. Thanks for the great information. I just want to make my contribution and report about our daughter. She has endured a long ordeal. With the diagnoses: ME/CFS, Fibromyalgia, Long Covid, hEDS.
Years of medical marathon are behind us. And now she has done it. I wrote a (very long) report that you can download here.
In it I describe her symptoms, what I found out myself, and how it is medically related. In my opinion, your diagnoses described above have something in common.
And the therapy she did, didn't cure her, but it significantly (!) alleviated the symptoms. So that she can now lead a life appropriate to her age. She can work full time and enjoy her free time.
I hope I can give an impetus with the information so that the doctors also recognize this.
Best regards
I've been reading here on the homepage for some time. Thanks for the great information. I just want to make my contribution and report about our daughter. She has endured a long ordeal. With the diagnoses: ME/CFS, Fibromyalgia, Long Covid, hEDS.
Years of medical marathon are behind us. And now she has done it. I wrote a (very long) report that you can download here.
In it I describe her symptoms, what I found out myself, and how it is medically related. In my opinion, your diagnoses described above have something in common.
And the therapy she did, didn't cure her, but it significantly (!) alleviated the symptoms. So that she can now lead a life appropriate to her age. She can work full time and enjoy her free time.
I hope I can give an impetus with the information so that the doctors also recognize this.
Best regards
