Jean talks about her story here
- Jean Hasse
- Disease Course Over Time:
- Jean's fibromyalgia began when she experienced knee pain during pregnancy. The pain spread to her ankles, then to her hips, then into her smaller joints and finally everywhere including her skin. She couldn’t move or experience touch without pain, had severe brain-fog, and was diagnosed with irritable bowel syndrome. She ended up leaving her job and was bed bound most of the time.
After VNS Jean still has pain; she’s still taking Lyrica and tramadol but before the surgery she was taking 350mgs. of Lyrica – now she’s on 75. She was 16 tramadol a day and now she’s taking two. She was able to go back to school and get a master’s degree and is now working. She’s also hiking and exercising.
- Type of Onset:
- gradual non-flu like
- Functionality at it's Worst:
- Mostly bedbound
- severe pain, allodynia, brain fog, irritable bowel syndrome
- Treatments That Made A Big Difference:
- Surgically implanted vagus nerve stimulator
- Treatments That Helped:
- Lyrica, tramadol, relaxation techniques
- Treatments That Had No Effect:
- Present State of Health:
- Almost recovered - Able to lead norrmal lifestyle
- Practitioner Associated With Recovery:
- Dr. Benjamin Natelson
- Words of Advice:
- Don't give up hope!
Read about vagus nerve stimulation in "Reborn: Reversing Fibromyalgia with Vagus Nerve Stimulation", Reborn II: Vagus Nerve Stimulation and Inflammation and Vagus Nerve Stimulation, Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS).
Some people are using TENS units to stimulate the vagus nerve via the ear. Find out more about that here.
Dr. Natelson found that about half the FM patients in the small clinical trial he did had similar life-changing results.
Dr. Natelson is beginning a new study to assess the effectiveness of non-surgical means of stimulating the vagus nerve using devices that can be attached to the ear.