Search results
-
Elemental diet throws food sensitivities into sharp relief
Tuna sensitivity screams histamine intolerance to me - I've had a fair amount of improvement of symptoms (esp puffy eyes, itching, headaches) from staying on a low-histamine diet and consuming the required daomine-oxidase (which degrades histamine) from sprouting pea-shoots in the dark for 10...- LondonPots
- Post #9
- Forum: Diet and Improving Your Gut
-
Recovery Story Survey Suggests Some Commonalities
I must admit to feeling very cross when I read these 'recovered through yoga' or 'the lightning process saved me' stories. I tend to assume that they actually had one of the following: a disorder other than ME/CFS that could be self-healed, with care simple lifestyle exhaustion (stress, bad...- LondonPots
- Post #4
- Forum: Others
-
ME/CFS/FM/POTS/IBS - Inter-related At the Core?
I've been assuming all along that my CFS/ME and POTS and whatever else are caused by brain inflammation (caused by what?)... I'm interested in the EDS comments, wondering if my agonising back pain at the start of all this was EDS - I'd said to anyone who would listen (not that anyone did) that...- LondonPots
- Post #9
- Forum: Other Research
-
Severe ME/CFS Revealed: Action for ME Survey Unveils the Severely Ill
I guess I could write a blog, but I'm not sure what angle to take. The summary would be 'Life for an ME suffer in UK: utter pain and misery, virtual death, guilt, abandonment by government verging on cruel and unusual punishment, loss of friends and family, outlook bleak'. Are we looking for...- LondonPots
- Post #5
- Forum: ME/CFS and FM News
-
Severe ME/CFS Revealed: Action for ME Survey Unveils the Severely Ill
Ohhh, such painful reading. Makes me realise how much I've improved recently.- LondonPots
- Post #2
- Forum: ME/CFS and FM News
-
Enhance Advocacy For People with ME/CFS in the UK - Take the Action for ME survey
Done! The question about 'Would an advocate have helped' was hard to answer, because I think I've got everything that is going by myself, painful as it was. The problem is, there's precious little going in the UK... Also, it asks how I've been for the last 3 months - depending on what the...- LondonPots
- Post #2
- Forum: Advocacy, Contests and Events
-
Your Vitamin D History?
Having read the various threads about Vitamin D (in particular this one about autoimmunity), and realising I was probably D-deficient for many years, I'm curious about your Vit D activity. There's a poll here, and do discuss your history further. My history: prided myself on avoiding the sun -...- LondonPots
- Thread
- Replies: 5
- Forum: General
-
Poll How Well Informed Was the Last Doctor You Saw?
Hi @WhyWhyWhy Please don't give up on this forum - we're all tired and cranky all the time, I think, and it can sometimes come out in the phrasing. I'm sometimes horrified by the tone of things I write, when I look at my posts again - far away from what I meant and just reflecting my constant...- LondonPots
- Post #35
- Forum: General
-
Bulk Purchase/Membership lab tests?
Interesting! And I can't believe anyone is trying to control what you get tested about yourselves! Nosy parkers. I don't think it's the same in UK. I'd still be wanting big discounts as a group, though.- LondonPots
- Post #3
- Forum: General Discussion
-
Bulk Purchase/Membership lab tests?
I'm wondering if there might be mileage in bulk-purchasing the lab tests we all need/want to get. That is, we persuade a lab test supplier to provide massive discounts for a standard range of CFS/ME tests to the CortJohnson forum members on the basis that we can direct our business to them....or...- LondonPots
- Thread
- Replies: 3
- Forum: General Discussion
-
Modafinil
I tried Modafinil for a couple of days, felt absolutely terrible, like someone had injected me with adrenaline, yet it did nothing for my clarity of thought. A bit like when you have several too many coffees.- LondonPots
- Post #24
- Forum: Other Research
-
When Emotional Stress Translates into Worsened Health
Yes, it doesn't take that much to put me back in bed with the curtains drawn if I'm already a bit low. I wouldn't have thought anything needed retraining, though: on the occasional days when I'm a bit more normal, my startle response is about nil, and trauma/abuse/rude-people just bounces off me...- LondonPots
- Post #11
- Forum: Symptoms
-
Autoimmune patients going into remission with Vit D protocol from brazilian Dr..
What a fascinating video! I rushed straight out halfway through to get my 10,000iu on our first t-shirt day this year in UK. Thinking about my own situation: I had already noticed that I'd been bumping along the bottom of the normal range for D3, and frequently below - despite supplementing...- LondonPots
- Post #16
- Forum: Health News
-
Poll Alcohol: How Well Do You Tolerate It?
Claudia, I have histamine intolerance and have tried the DAO supplements - they are very expensive (given how many you'd need to take) and actually had no effect on me. However, I have been trying the Pea Sprouts method of obtaining DAO and seem to be having some success (as measured by how...- LondonPots
- Post #20
- Forum: Symptoms
-
Poll The Reverse Bucket List for ME/CFS: If You Were Well.....What Would You Do?
I find the depression/MECFS distinction very useful amongst 'friends' who are still somehow convinced that I am really just feeling a bit low. I say to them "Depressed people can't think of anything that's worth doing or caring about. Me, I have dozens of things I seriously want to do, but I...- LondonPots
- Post #44
- Forum: General Discussion
-
Poll Were You Ever Prescribed Antidepressants for ME/CFS or Fibromyalgia?
My doctor prescribed me antidepressants years back, on the basis that 'at least they will help you sleep' - I'm not sure what his logic was, but hey. I took just ONE, and lay awake in bed for hours feeling so unbelievably weird and nauseous that I threw the rest in the bin. Horrible.- LondonPots
- Post #6
- Forum: General
-
If You Could Do it All Over Again What Would You Would Do Differently?
Emphatically I would not have wasted over £100k trying to create a self-employment life for myself (over and over again, each time relapsing) to provide an income when I couldn't work full time. I wouldn't have persisted in believing it was temporary, thinking I could continue living/spending as...- LondonPots
- Post #34
- Forum: General Discussion
-
Poll Alcohol: How Well Do You Tolerate It?
I've just remembered an incident regarding alcohol (this one not embarrassing, for a change): when I first got ill one of my main symptoms was a permanently stiffened back, such that I could only hobble along, bent a bit sideways. One evening I had a few beers with a friend and, hallelujah, I...- LondonPots
- Post #15
- Forum: Symptoms
-
Oh No! High Fat Diet Impacts Brain Health
Hmmm. Well, we don't know what the fats were that they were fed on (inflammatory fats?) or what the rest of their high-fat diet consisted of (malnutrition?); we aren't mice; and presumably they aren't mice with CFS/ME. Plus I've never had a high-fat diet, yet I got inflammation. And they eat...- LondonPots
- Post #6
- Forum: Diet and Improving Your Gut
-
Poll Alcohol: How Well Do You Tolerate It?
I vaguely remember reading that it's because the liver stops doing other work (energy production?) until it has cleared this toxin (the alcohol). I drink very little now, though I hadn't been a big drinker since I was a teenager (natch).- LondonPots
- Post #5
- Forum: Symptoms
Support Our Work
Health Rising’s Quickie 2025 Summer Donation Drive Has Begun!
HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT
Get Our Free ME/CFS and FM Blog!
Forum Tips
Shopping on Amazon.com For HR
Latest Resources
-
Caitlan's 1-2 punch works with her severe ME/CFSLow dose naltrexone and neuroplasticity power Caitlan's recovery- Cort
- Updated:
-
New idea to alleviate many complaintsExtreme improvement after respiratory therapy in young patient with ME/CFS, fibromyalgia, Long Covid- Norbert
- Updated:
-
Drugs Get Mathew Most of the Way and Hyperbaric Oxygen Does the RestOne doctor got Mathew part of the way and another got him all th way- Cort
- Updated:
-
-
Lucie's Surprisingly Simple Road to RecoveryYears of searching results in a simple and inexpensive pathway to recovery- Cort
- Updated:
![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
