Search results
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Poll What type(s) of doctor gave you your diagnosis for ME/CFS?
ME/Chronic Fatigue Syndrome On your path to an official diagnosis? I started this poll to get an idea of where to head next in my journey to getting treatment and pursuing disability. Here is the sibling poll for fibromyalgia: here's the link to that one If you take the poll, then consider...- ShyestofFlies
- Thread
- Replies: 22
- Forum: General
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Nuvigil (Armodafin
My rheumatologist gave me three sample packs for a dose of 200 mg. She told me to cut them in half and to only take it on bad days (which is everyday but that's not what she meant). The lowest dose perscribed is 150 mg. I will report back with how effective this drug is for relieving fatigue...- ShyestofFlies
- Post #2
- Forum: Energy! Mitochondria, Methylation, B-12, etc.
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Psoriasis?
I was diagnosed with psoariais as a child, but my dermatologist now (10-12 years later) says I show no signs of it, just seborrheic dermatitis. My dermatologist was very interested in doing a skin biopsyto confirm but never was able to because she needs an untampered with skin sore... Which is...- ShyestofFlies
- Post #19
- Forum: Symptoms
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Does Serotonin Create or Fix Problems?
I have moderate to severe mdd and several other mental illnesses, I have tried several seratonin based meds, some made me sick, some did nothing- for any symptoms of any disorders, only a few worked- and when they do they do not help my fatigue or pain levels. From all my research it is clear we...- ShyestofFlies
- Post #4
- Forum: General
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Hyperalgesia and needle-phobia as a symptom
Here's an excellent resource on needlephobia and what solutions are availible for treatment/management: http://www.needlephobia.com Adverse reactions to routine needle sticks that are called needlephobia (you don't need an active fear of needles just a reaction physically to have needlephobia)...- ShyestofFlies
- Thread
- Replies: 0
- Forum: Symptoms
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Poll I get colds and flu...
Despite only leaving the house once a week or less, I still pick up colds and flus several times a year and always have. Ever have that kid in your grade school classes who was absent over 30 days every school year to the point where they were nearly truent? Yeah, that was me. If I see my...- ShyestofFlies
- Post #12
- Forum: Symptoms
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The Psychosomatic Researcher in the NIH's Big Chronic Fatigue Syndrome (ME/CFS) Study
Despite this guys involvement I still have very high hopes for the study based on the video. I will be commenting and signing a petition against his involvement based on some of his offensive comments, particularly the imagery from some of his power point presentations. I think after how long...- ShyestofFlies
- Post #40
- Forum: ME/CFS and FM News
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Duloxetine help pain?
I've been on it for a month and a half or so- no symptoms changes other than minor cog fog relief. Nothing for pain. No side effects either though. Also it oddly is not seeming to be very effective for my depression or other mental illnesses at all. My case seems to be rare, from what I've heard...- ShyestofFlies
- Post #4
- Forum: Relieving Pain
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Reflux or something else?
Ah I should of explained better, when I said the hiatal hernia is made worse by laying down I didn't mean the pain/sensation is made worse- but the actual condition itself. It takes a long time (months/years) to develope and the sensations from it can be like you described but don't always...- ShyestofFlies
- Post #23
- Forum: Symptoms
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Reflux or something else?
@Who Me? if it hasn't been mentioned you should consider hiatal hernia (made worse by laying down immediately after meals) and a duadnal ulcer in your differential diagnosis. I have had both of these and reflux identified via endoscopy or treated over the years, and the only real preventative...- ShyestofFlies
- Post #20
- Forum: Symptoms
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Brain fog & digital devices
There's a program called f.lux everyone on a traditional pc or mac should look into, it recalibrates your monitor's light color based on the time of day and where you live.- ShyestofFlies
- Post #9
- Forum: Symptoms
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ME/CFS Grand Rounds And Follow Up Discussion Videos
I for one am the most optomistic of anything I've been since I got sick about this group they have formed. Cautiously excited for some definite results, especially biomarkers.- ShyestofFlies
- Post #4
- Forum: ME/CFS and FM News
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Poll How Much in Lost Wages Did Fibromyalgia and/or Chronic Fatigue Syndrome Cost You This Past Year?
I was unable to work during college because it was a very taxing environment (average four hours of sleep a night). After college, I worked for only three-four months of my life (part time) during a remission period in all my diseases/syndromes that happened to come at once. However the work...- ShyestofFlies
- Post #44
- Forum: General Discussion
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New Threads
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Support legal action of JusticeforME to address decades of Health Inequalities in the UK
- Started by Pike
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Breakthrough: cutting out long chain fatty acids and taking Medium Chain Triglyceride oil.- Started by Nicolaas
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![ME/CFS lecture | Dr Nancy Klimas | 2011 [Chronic Fatigue Syndrome / SEID / New Zealand] - YouTube](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
