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Health improves away from home
This phenomena could very well be associated with toxic mold exposure. Some people do sabbaticals to see if it is their house that is the culprit. Going away to a pristine environment may prove to be beneficial... you may not notice it at first, but when you return home there will be a...- Lissa
- Post #3
- Forum: General Discussion
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Interested in Keto? Read this article!
HA! My husband is an engineer. I sent him the link -- I am betting that he'll want to run out and build one ASAP. Thanks for finding this!- Lissa
- Post #6
- Forum: Diet and Improving Your Gut
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The Chronic Fatigue Syndrome and Fibromyalgia Brain Fog Poll
HA!!! That conversation sounds oh so familiar! My husband has learned to speak my language... and now that he's gotten sick too, he's had the same thing happen with words. We are quite the pair, as are you and your daughter! (Dare I ask about the bathroom floor in the night?) Can I just... -
Poll Having you ever been accused of "faking it"
ME TOO! Where is it??!! I want my CASSEROLE!!! :-)- Lissa
- Post #38
- Forum: General Discussion
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Changing Hearts and Minds: A Review of Unrest
Next year is coming soon! :-)- Lissa
- Post #12
- Forum: Advocacy, Contests and Events
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Changing Hearts and Minds: A Review of Unrest
Hi @JenB ! My husband and I are avid supporters of your endeavors --- we can't wait to get our copy of Unrest when the time comes for the Kickstarter rewards to roll out. Woohoo!! I saw that it's coming to Boston in October and was hoping maybe we could make it. It would be amazing to get...- Lissa
- Post #11
- Forum: Advocacy, Contests and Events
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In Full Remission
@Merida this would be a fabulous study/graph/map....... Rates of autism over time Rates of ME/CFS over time Rates of Alzheimers over time Rates of vaccine injures over time Rates of ..... insert many others AND then also look at what else was happening in the 60's & 70's. Building... -
Poll The Reverse Bucket List for ME/CFS: If You Were Well.....What Would You Do?
Cades Cove!!! That brings back memories for me too. Summer of 1992 -- cross country camping trip with college friends. We spent a few days in the Smokies and camped in Cades Cove..... The last night we were there I got whuffled by a black bear through the paper thin fabric of the tent...- Lissa
- Post #93
- Forum: General Discussion
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Need to delete this. [Deleted]
Interestingly enough, my husband's ear ringing correlates directly to mold/mycotoxin exposure. The closer it is, the louder it gets for him. In fact, he has been able to hone in on hidden sources within our home, multiple times. And this was post-remediation, after it was supposedly "clean"...- Lissa
- Post #75
- Forum: Mold and Environmental
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Need to delete this. [Deleted]
Wow - that's really interesting about the ringing ears! My husband has that... but he's noticed that for him it gets "loud" the closer he is to mycotoxins. There seems to be a direct relationship to exposure. That said --- it is intriguing --- because he also is treating for Lyme. He's...- Lissa
- Post #73
- Forum: Mold and Environmental
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Too many, too similar
There is a site called diseasemaps.org --- I forgot which acronym they go by in terms of CFS "titles". I think it is combined with ME though. And they do many other diseases as well. Try https://www.diseasemaps.org/chronic-fatigue (I got there from logging in to my account... not sure if...- Lissa
- Post #17
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Need to delete this. [Deleted]
Yes @Merida -- I also have had Lyme. However --- I was diagnosed with ME/CFS first, was ill for 4 years before getting Lyme on top of that. Luckliy I got a bullseye rash and an acute reaction so I knew that there was something else going on in addition to the ME/CFS. I treated successfully...- Lissa
- Post #64
- Forum: Mold and Environmental
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Too many, too similar
As a former geographer I've often wondered what mapping "outbreaks" might reveal --- In conjunction with various environmental toxins, radiation, contamination, what-have-you. I feel like the problem there is that we are limited in getting any accurate headcounts with locations. Last I...- Lissa
- Post #13
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Acupuncture caused me to crash badly
@Kim812 -- I had the same experience back in 2010! A friend raved about this acupuncturist, so I went. This was within the first few months when I became fully incapacitated with ME/CFS. The woman seemed really great, but I'd never been to one before, so didn't know what to expect. I recall... -
Need info...have just been diagnosed with brain mass
@Ladyliegh - hope you are doing OK. Thinking of you -- can't imagine how hard it must be. Fingers crossed that it's a success, and you wind up CURED! :-)- Lissa
- Post #8
- Forum: General Discussion
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Need to delete this. [Deleted]
Please let us know how things go @grapes! I'm on the same path and interested in other people's stories...- Lissa
- Post #46
- Forum: Mold and Environmental
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Need to delete this. [Deleted]
Ryan, may I ask what the side effect was? I also launched into the CSM as directed by my Shoemaker trained ND. I stepped it up over a few weeks until I was doing the 4 doses a day, plus the extra EPA and DHA oils. However, I've had a hell of a side effect --- it's like hot flashes I guess. I...- Lissa
- Post #45
- Forum: Mold and Environmental
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"Through the Shadowlands"- Julie Rehmeyer's Chronic Fatigue Syndrome (ME/CFS) Tale of Recovery
Hi Wayne! Thanks for the links-- we have already decided to use Roxul, a mineral wool. My husband (the systems engineer - ha ha) did his own little trade study when he was researching what to use. We haven't installed any yet... hoping to do it soon though. Getting a functional bathroom...- Lissa
- Post #22
- Forum: ME/CFS and FM News
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"Through the Shadowlands"- Julie Rehmeyer's Chronic Fatigue Syndrome (ME/CFS) Tale of Recovery
I would not say that Julie's story is attempting to define all cases of ME/CFS to be mold. And I would also concur with that -- it may or may not be a factor. Personally, I think it depends on individual genetics, exposure, and perhaps even combinations of (toxic mold with?) chemicals...- Lissa
- Post #19
- Forum: ME/CFS and FM News
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