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Data from 6 studies show that COVID vaccines cause more harm than good in chronic illness patients
I'm happy to report that I waited for the Novavax vaccine, got it a month ago, and have had no reactions at all! OK, a sore arm for a day. It's amazing to get so much protection from such a small inconvenience- madie
- Post #45
- Forum: General Discussion
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Do any medications/ supplements help?
I've done a lot of brain retraining. None of the psychology-based ones have helped at all, and one in particular feels silly. However the Buddhist systems of watching and learning the workings of our minds has been a life saver. Not in any curative sense, but enormously in coping... -
jerk awake at night and tremors
My legs used to kick a lot at night, and occasionally I would get random body jerks. Never tremors. I take a standard dose of magnesium glycinate at night, and don't have this problem any more. -
Is anyone doing the nicotine patch test?
I wrangled my sleep back to my-normal of 3-4 wakings in 9 hours, and am now testing 1/8 of a 7mg patch, daytime only. I fold the patch. This dose does not affect my sleep. There's a small increase in underlying energy - how interested I am in doing anything, and how long I can focus on doing...- madie
- Post #8
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Is anyone doing the nicotine patch test?
Sorry! I haven't been on. I stopped using the patch because my bad insomnia got terrible. I'm still trying to get back to my previous normal of 3 wakings a night. I did test daytime only at 3.5mg, but didn't try going down to daytime at half that.- madie
- Post #7
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Is anyone doing the nicotine patch test?
I stopped the 3.5mg patch last night. I'd gone from waking 3x to 5 or more. I thought I would switch to wearing it during the day, but I'm taking a few days off to see what happens. Maybe I'll start up again at half of this dose, if I can fold the patch that small. The patch improved...- madie
- Post #5
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Is anyone doing the nicotine patch test?
I've just started this morning. I've lived with CFS since 1985; my function is about 30%. I bought 7mg rectangular patches so I could easily fold them in half and tape on, for a 3.5mg dose. I've been wading through the twitter posts, and there's a lot there that's helping me figure out a...- madie
- Post #3
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Is anyone doing the nicotine patch test?
I've just sent for the nicotine patches to join this n=1 testing group: https://twitter.com/TheNicotineTest. Is anyone else trying this?- madie
- Thread
- Replies: 10
- Forum: Chronic Fatigue Syndrome (ME/CFS) Research
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Data from 6 studies show that COVID vaccines cause more harm than good in chronic illness patients
Well, the vaccines and isolation were worth it for me. The last thing I need is long Covid on top of CFS. In the early days all I had were cloth masks, which were barely protective. Also my pod is 3 of my grown kids, and one has asthma. We're all protecting each other. But now I've got a...- madie
- Post #6
- Forum: General Discussion
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No doctor available
I'm on Youtube a lot, and I never thought of this. Great tip! I've just had great luck over there getting information about resetting my circadian rhythm and time restricted eating. My insomnia is out of control; maybe these will help. -
Learning to pace
I agree that you have to figure out your triggers. I can read as much as I want, but sometimes all my brain can handle (understand) is very light fiction. I don't watch TV or anything with lots of activity, it's pretty much all people talking about a topic. I'm trying to build up strength...- madie
- Post #4
- Forum: Stress Reduction, Pacing and Exercise
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Data from 6 studies show that COVID vaccines cause more harm than good in chronic illness patients
I've wondered about this. I took all of the Covid vaccinations, but didn't do flu shots. I'm so used to just staying home, and masking when I have to get groceries, that I've decided to not take the next Covid booster. I reacted to all of the shots - I still have some residual 'covid toes'...- madie
- Post #4
- Forum: General Discussion
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Move over, larks and owls! There's a new sleep habit paradigm in town: dolphin, lion, bear, and wolf "chronotypes"
The quiz is hilarious! "If you were going to chop wood for 2 hours, would you prefer to do it [choice of timeframe]."- madie
- Post #2
- Forum: Sleeping Better
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Health improves away from home
I bought a Coway air filter a few months ago and put it at the top of the (open, curtained) basement stairs. Within a week brain fog and fatigue improved. I've also gone back to taking Quercetin 2x a day, and the combination provides a consistent and noticeable lift.- madie
- Post #9
- Forum: General Discussion
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Gerd, Reflux, etc and WHY?
FWIW I've supplemented magnesium for years because it's my sure-"cure" for my legs kicking at night. This hasn't helped my throat clearing at all, which doctors diagnose as non-reflux GERD. I get about half better with strict dairy avoidance, and improve enormously when I avoid ALL of the...- madie
- Post #3
- Forum: General Discussion
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OMG Phoenix Rising Sucks
I've just come back after a long hiatus, where I was active on FB instead. I'm deleting FB, so...I'm baaack! I also was very active on PR right up until Cort came here, and PR changed.- madie
- Post #6
- Forum: General Discussion
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Fibromyalgia Novel Pain Treatments
You could try the Vital Motion Hummingbird device. It costs $400 and comes with a 30 day trial period which they apparently extend for people who are unable to start at full time/intensity. It was developed for FM. I'm in a small FB group of people trying it for ME/CFS symptoms, and I've...- madie
- Post #25
- Forum: Relieving Pain
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High THC Cannabis - Sleep Inducer and MCS Buster - Who Knew?
I'm finally getting some sleep support, after experimenting for more than a year, with a combination of Dixie Relaxing tablets and Lucid Mood Sleep vape pen. My normal has been 3-5 wakings per night for decades. I'm now waking twice, which feels amazing. -
Kratom
I copied Amy's list when I was planning my first orders, and this is the description of Confetti: Confetti Blend = reds, greens, whites & yellows/ energizing or mellow- madie
- Post #28
- Forum: Sleeping Better
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Kratom
See my post above about the salmonella kratom issue. It's one company, and I've never heard of them.- madie
- Post #26
- Forum: Sleeping Better
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