Hi Merida I vaguely remember reading this post and just now reread it. Were you able to get an appt?Cort,
Geez. I just can't believe this. Over 17 years I have seen about 6 neurologists. At least I finally got another diagnosis that makes sense.
I am 'jumping ship' and requesting an appt. with a very well-known neurosurgeon/ researcher in L.A. - an expert in vertebral artery/cervical artery/venous blood flow. After reading about vertebral artery syndrome following chiropractic neck injury, I realize that my story fits perfectly. So, I will see where this leads.
Of important interest, dissection of the vertebral or other neck arteries can occur spontaneously - and are of special concern in those with connective tissue disorders - EDS people !! Sometimes the only or main symptom is headache. Any sudden visual symptoms are very suspect that such an event may have occurred. There is great variability in how this can present. Have any EDS people been evaluated for this ???
i wrote to an important (and great) Chiari site about these neck arterial dissections, which can produce exactly the same symptoms as Chiari. Looks like no ( or few ???) Chiari people have had MR angiograms ??? Wow.
I am looking for a good article to post.
This is the YouTube that excited me....
Does the video describe yet another procedure? If only it could be this easy...
The following is what I found on the TVAM procedure done by a specialist in CA.
TVAM (Transvascular Autonomic Modulation) is a promising new treatment for patients with autonomic dysfunction, or dysautonomia. The procedure involves modulation of the nerve fibers surrounding the vein. These afferent autonomic fibers are nerves that function as a conduit for communication between the body and the ANS. TVAM works by stimulating them activates a specific reflex responsible for regulation of venous tone. This venous distension reflex, when activated leads to increased sympathetic tone. The procedures modulation of sympathetic tone leads to improved autonomic function in many patients. http://autonomicspecialists.com/dysautonomia-3/